Your experience of ME/CFS services – Take the survey by #MEAction UK

The National Institute for Health and Care Excellence (NICE) are updating their guidelines on ME. As part of this they have published a call for evidence about 3 topics. #MEAction UK has put together the following survey to provide further evidence for the committee.

[maxbutton id=”22″ url=”https://forms.gle/ZXEdp7W5nW4KBBcu8″ text=”Take the survey” ]

 

The survey asks about advice given on managing your symptoms when you first spoke to a healthcare professional about your symptoms and your experience at ME/CFS clinics in the UK, including the treatments and advice provided. It also asks what you would have found most helpful in hindsight.

The deadline for responses is 7th October 2019.

We will continue to advocate for biomedical research funding so that areas including those under consideration can be studied to a high level of rigour, leading to high quality evidence based guidelines across the globe. However due to a paucity of ME research funding, there isn’t yet an evidence base that can adequately answer these questions.

This survey will add broader evidence of the experience of people with ME, balancing out the clinical judgment also being utilised to write these guidelines.

If you have a diagnosis of ME, CFS, or ME/CFS, please take the survey here.

 

 

Facebook
Twitter
WhatsApp
Email

Latest News

Happy Pride Month 2022 with rainbow ribbon in a heart

#MEAction Recognizes & Celebrates Pride Month 2022!

#MEAction recognizes and celebrates Pride Month! As a community that welcomes and encompasses all, this Pride Month, we asked members of our LGBTQIA+ community to share what Pride means to them and what they have learned from this movement that they bring with them to the ME movement. Here are a few responses: Kristina Osobka-Stier

Read More »
Severe ME Artist Project 2022 over swatches of gold paint

Severe ME Artists Project 2022!

#MEAction is once again excited to announce our Severe ME Artists Project 2022 that will feature work from those within the severe ME community and will be in recognition of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase their art work (whether it be

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top