Brussels will Discuss EU Petition to Fund Biomedical Research for ME

Great news!

Remember the petition that asks the EU to fund biomedical research on ME? It will be discussed at the meeting of the Committee on Petitions on October 3rd 2019 in Brussels! It is scheduled for discussion at around 11:05 CEST.

Francis and Evelien have been working on this project for over a year and they will both try to attend the meeting.

Once the petition has been introduced by the Chair, Evelien will be allowed to give a short speech. Then the European Commission will take the floor. After that the MEPs will discuss the petition. The decision is made by the Members of the Committee, live in public, right after the debate.

This will be an important day! The outcome is still uncertain, but our goal is to move forward!

Sign the Petition

If you are an EU citizen you can still support the petition if you haven’t done so already! Please click the following link for instructions.

[maxbutton id=”22″ url=”https://www.meaction.net/2019/07/17/sign-a-petition-to-ask-the-eu-for-funding-for-biomedical-research/” text=”Sign the petition” ]
Watch the Discussion!

You can follow the Committee discussion by webstream at the following link: http://www.europarl.europa.eu/committees/en/peti/home.html

If you are unable to watch the meeting live, a recording will be available the following day.

The meeting is public, so anyone can attend! Please note, that if you wish to attend the meeting you must have a security clearance. If you want to visit, please send an email to the PETI Secretariat ([email protected]) and include the following information:

– your name

– date of birth

– the number of your passport or ID card

– the petition number: 0204/2019

– the date of meeting: 03/10/2019

 

Thank you for your support!

Francis and Evelien

Contact us at [email protected]
Facebook
Twitter
WhatsApp
Email

4 thoughts on “Brussels will Discuss EU Petition to Fund Biomedical Research for ME”

  1. I had goose bumps and tears in my eyes when I saw Evelyn’s incredibly strong and moving performance!
    I’m so incredibly thankful for your huge commitment and I’m so hopeful that things will finally change in the future!

    Thousand thanks and thousands greetings from Germany!

    1. Evelien & Francis

      Hi, I’m Francis. I’ve been helping Evelien with the petition. Yes, it was incredibly generous of Evelien to speak at the Petitions Committee and she did so well. She reminded many people of the devastating cost of this disease and provided a push for the EU Commission to fund biomedical research into ME.
      There’s an ME Action Facebook group in case you’re interested in joining: #MEAction European Union (EU)

      Thank you very much for your message.

  2. Dear Evelien, my name is Martin. ME since 1997, 24 hours in bed in a dark room. Unable to survive without permanent help.

    What you did for us all is so GREAT !!!

    A big hug and thanks and best wishes for recover after this.

    Martin
    (Founder of CMI-Haus)

    1. Evelien & Francis

      Hi Martin, my name is Francis Martin, I’ve been helping Evelien with the petition.
      Thank you very much for your message. I think those who are so severely ill can understand each other – so much better than we outsiders. Evelien’s speech has had a significant impact e.g. influential people have offered to assist in lobbying for funding for biomedical research in the EU. I’m now more confident that the EU Commission will fund biomedical research; that, combined with research in the US etc. will hopefully deliver the diagnostic test and treatments we need.

      There’s an ME Action EU Facebook group: #MEAction European Union (EU)

Comments are closed.

Latest News

DHSC released a new progress Report

DHSC has released an update on the progress of the work underway to support the development of a Delivery Plan on Myalgic Encephalomyelitis / Chronic Fatigue. This is dated from December 2022.You can read the full report using the link below: DHSC Information Bulletin Dec 22 FINAL MECFS updated

Read More »
Gold fireworks lighting up over a black background. The words, TOP HITS 2022 is in the center in white lettering. the words: #MEAction accomplished a lot last year is undernether with the #MEAction logo

Let’s Look at #MEAction’s Top Hits from 2022

As we ring in the new year, it is a wonderful time to reflect on how much #MEAction accomplished in a very busy and exciting 2022! There are so many wins to share, so we decided to narrow down the list to our TOP HITS! ——————- #MILLIONSMISSING 2022: * Bringing together the powerful Virtual #MillionsMissing

Read More »
A photo from Millions Missing Scotland of a group of 20 protestors outside the Scottish Parliament. They’re looking serious and holding signs that say Millions Missing, and a pledge signed by MSPs. Many are wearing red ME Action t-shirts. A yellow icon of a person is overlaid next to them with an arrow pointing to it and the words ‘Could it be your MSP?’ A red banner along the bottom says ‘Share your story and ask your MSPs to stand up for people with ME.’

Ask your MSPs to stand up for people with ME

Sue Webber MSP’s motion about ME will be debated in the Scottish Parliament on Thursday 2nd February – and your MSPs should be there! The motion calls on the Scottish Parliament to recognise the outcomes and recommendations of the stakeholder report on ME, including education of healthcare professionals and development of specialist services. We’re pleased

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top