On Tuesday, March 8th at 10am ET, the NIH is holding a one hour tele-briefing to answer the community’s questions about their plans for the intramural study and the ME/CFS program. Due to the limitations of the technology, only 100 lines are available. Call-in information has been sent to a select number of advocates including members of the US Action Working Group and MEAdvocacy.
#MEAction is trying to ascertain how many free lines are still available after the RSVPs they have received. We are asking the NIH if we can share the remaining open lines with anyone in the community who is interested in participating, randomly selected from those who express interest. We don’t know if this will even be possible but if you are interested, please fill out this very short form.
In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the