On Tuesday, March 8th at 10am ET, the NIH is holding a one hour tele-briefing to answer the community’s questions about their plans for the intramural study and the ME/CFS program. Due to the limitations of the technology, only 100 lines are available. Call-in information has been sent to a select number of advocates including members of the US Action Working Group and MEAdvocacy.
#MEAction is trying to ascertain how many free lines are still available after the RSVPs they have received. We are asking the NIH if we can share the remaining open lines with anyone in the community who is interested in participating, randomly selected from those who express interest. We don’t know if this will even be possible but if you are interested, please fill out this very short form.

Pillow Crafters Showcase: Healing Themes—The Wildflower Process
#MEAction invites you to experience Pillow Crafters Showcase: Healing Themes—The Wildflower Process on Wednesday, March 26th, 2025 at 11am PT/2pm ET/6pm GMT, a showcase of resilience, creativity, and the many ways we reclaim our identities after an ME/CFS diagnosis. RSVP Here Through the symbolism of a wildflower, participants have explored themes such as grief, transformation,
1 thought on “Participate in the Tuesday March 8th NIH telebriefing”
Good idea 🙂
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