CureME research news email service launches

Swedish ME patient Kasper Ezelius has announced the launch of an email service called CureME that will allow subscribers to both post and receive news on ME/CFS.

 

Subscribers can choose to receive research news only, which is the main focus of the site. Registration is free.

 

The list replaces Co-cure, an ME/CS information exchange forum that has largely fallen into disuse since the death of it founder, ME/CFS patient Ray Colliton, in January. Mr Colliton had run the site on a voluntary basis for 21 years.

 

Mr Ezelius invites patients and researchers to sign up, use CureME’s content, and post stand-alone articles themselves.

 

He invites people interested in acting as moderators to contact him and hopes to have moderators in a range of time-zones for smooth operation of the service.

Facebook
Twitter
WhatsApp
Email

Latest News

A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top