Australia shouldn't fund 'totally inappropriate' CBT and GET

Share on facebook
Share on twitter
Share on email

In a radio interview with The Wire, Senator Scott Ludlam says Australia shouldn’t be funding research into totally inappropriate exercise regimes or therapy, “these remedies are actually counter-productive and dangerous”.
The Wire, an Australian community radio current affairs program, also interviewed Emerge Australia’s president, Sally Missing, and ME patient Sasha Nimmo. The Wire examines the low level of funding and asked Australia’s National Health and Medical Research Council how it got funding figures wrong.  Listen online here.

“Chronic Fatigue Syndrome / Myalgic Encephalomyelitis affects up to 242,000 Australians, yet research into the condition is seriously underfunded in Australia, according to Greens Senator Scott Ludlam and advocacy group, Emerge Australia. The Department of Health revealed in Senate Estimates only $1.6 million had been spent on research in Australia over the past 16 years. CFS/ME, also known as Post-Viral Fatigue Syndrome, was first recognised by the World Heath Organisation in 1969, yet little progress has been made in terms of effective treatment.”
 

The Wire, independent current affairs on community radio around Australia.

 

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

4 thoughts on “Australia shouldn't fund 'totally inappropriate' CBT and GET”

  1. Hello,
    These is very upsetting and we see this happening not just in Australia but everywhere. The disease has substantial imapacts and is being inappropriately addressed by government and health authorities. This is very meager funding and hopefully the NIH studies will prove this disease has biological markers…which in reality is does…we just need the evidence from a good medical association.
    CBT AND GET need to be thrown out because of the harm they cause.
    I hope our leaders start taking us seriously.

  2. We know that 1.6 million, in 14 years is still a gross overestimate and includes money spent on diseases other than ME/CFS.
    The real figure is?????
    This is a disease that costs Australia 4 billion a year!! Wake up Canberra- abandoning us is inhumane and expensive.
    You say you want people off the DSP, then why are t you researching this disease??
    Even basic disease management tools like using heart rate monitors, and pacing found to be
    effective by many patients haven’t been quantified.

    1. Hi Freda,
      I’m in Canberra and I’m awake!
      When you say ‘Canberra’, you mean the federal government who make decisions about funding. Your elected representatives from all over Australia make the decisions, get in contact with them.

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Sign petition To Fix ME/CFS tracking In US!

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the

Read More »

NICE announces roundtable event to ensure implementation of ME/CFS guideline

NICE announced today that it will hold a roundtable in September as the next step in the publication of the ME/CFS guideline. The roundtable will include representatives from patient organisations and charities, relevant professional societies, NHS England and NHS Improvement, NICE and the guideline committee. It aims to, “better understand the issues raised and determine

Read More »

#MEAction & 6 ME Orgs Call for CDC to Change How it Tracks ME/CFS

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM).  Today, ME/CFS does not exist in the US ICD-10-CM. Instead,  most US doctors assign the code for chronic fatigue

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top