James Coyne Stormont talk on YouTube: PACE "outrageously bad"

Share on facebook
Share on twitter
Share on email

Professor James Coyne’s February 9 Belfast talk, “The Scandal of the £5m PACE Trial”, is now available on YouTube.

The talk, given at Stormont, the home of the Northern Ireland Assembly, was delivered to a 40-strong audience of Members of the Legislative Assembly (MLAs), doctors, researchers and key health decision-makers.
Professor Coyne spoke about  how growing up with a severely disabled brother had led him to be someone “who resents when they see vulnerable people… mistreated”.
He said that his attention had been drawn to the trial by a comment in the Daily Telegraph by Professor Michael Sharpe, one of the PACE authors, that seemed to show “contempt” for patients.
Professor Coyne praised “citizen scientists” such as Tom Kindlon, who has published criticism of PACE in peer-reviewed journals and whom Professor Coyne described as “wonderful”, and Alem Matthees, who is attempting to get the PACE data released for re-analysis through a Freedom of Information request.
Professor Coyne described his own attempt to get the data via the journal PLOS One’s data-sharing policy as an “internationally watched standoff”. He said, “I think that once I start analyzing the data I’ll be able to reveal some of the real harm that was done to patients in that trial… I think [the PACE authors] are losing the battle just by holding out”.
PACE was, he said, “an outrageously bad trial”. He added that a cynical view of it was that the “investigators know it did not show that psychotherapy for ME/CFS works” and that “they don’t care if it does”.
He said that “the PACE trial preserves the myth that [ME/CFS patients] basically have a mental health issue”.
Professor Coyne ended by attacking Dr Esther Crawley’s SMILE trial of the Lightning Process for children with ME/CFS. The intervention was, he said, “a quack treatment… based on pseudoscience”. He added that the trial “really upset” him and was “indefensible and unethical”.
Professor Coyne’s talk was the second organised for him in Belfast by the charity Hope 4 ME & Fibro Northern Ireland. Sally Burch, a member of the organisation, has provided a summary of both talks. She and Jo-Anne Dobson (the MLA who hosted the event) gave a short introductory talk before Professor Coyne’s presentation, which can also be seen on YouTube.
Image credit: Just ME

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

#MEAction activists outside Scottish Parliament

Scottish Election! Ask your MSPs to support people with ME

If you live in Scotland, please join our campaign to ask your MSPs to pledge their support for people with ME. Email your MSPs The Holyrood elections are coming up on 6 May 2021 and we want to make sure that MSPs are aware of ME and the desperate need for support. There are more

Read More »
Terri Wilder - #MEAction Activist Camp

#MEAction’s ACTIVIST CAMP! – the Highlights!

It’s a wrap! Last weekend concluded the final session #MEAction’s first ever ACTIVIST CAMP!, a teach-in series for activists in the United States. We are so proud of this program and what it has accomplished. Congrats to our new grads!  #MEAction ACTIVIST CAMP! aimed to deepen our campers’ engagement with activism – teaching our collective

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top