Liisa Lugus has been bedbound with extreme myalgic encephalomyelitis for 13 years and is losing her current home. She has nowhere to go and needs our help.
For more than a decade Liisa Lugus has been bedridden with an extreme case of myalgic encephalomyelitis (ME/CFS). As those of you that have experience with this disease know, the cost of paying for the medical expenses of an ME sufferer are astronomical. Left well under the poverty line by her annual pension of less than $5/hour, Liisa can hardly pay for food and shelter, never mind medication and hospital bills.
“Her functionality is similar to someone who has cancer and is weeks to days away from death, yet she survives, and is a beacon of inspiration despite her circumstances.”
Liisa’s supporters have launched a crowdfunding campaign to raise the minimum amount of money required to get her into a stable housing situation within the next few months and to find her long-term in-house care. Her elderly mother can no longer house and care for her and is in desperate need to find a suitable living situation for her daughter.
Follow the links below to learn more about Liisa and please give any amount that you can to help her secure a place to lay her head at night.
5 thoughts on “Please Donate to Help Liisa Lugus Find Housing and Long Term Care”
I’m in this situation as well and have been for 16 years and I don’t understand how MEAction.net can ask for help for one person and not others as equally as debilitated and incapacitated.
Not that I don’t empathize with Liisa, since I am in the same position, but to favor one patient over another seems very unfair.
Hi Anonymous,
I’m not aware of the details of your situation, but I’m actively involved in trying to get help for fellow severe ME patients who are facing housing crises (either because of environmental triggers or because of other reasons). Feel free to contact me at [email protected]
Liisa was and is facing an emergency situation. Construction/renovations had begun on other units in her apartment building, and even at 10% of the eventual use of equipment, the noise was absolutely unbearable, even with her using ear plugs on top of industrial ear protection. It resulted in severe neurological reactions including seizures, and within a short time of the beginning of construction, she had to take an ambulance to the emergency room (despite the fact that ambulance rides cause her to crash). She is currently in hospital, and we have no idea how long she will be able to remain there. Neither the doctors nor the construction crew believe she will be able to tolerate her previous residence, until the construction finishes (over six months from now).
So she is quite literally homeless.
Hi Anonymous – we are happy to share personal fundraisers, whether folks are raising money for charity or for urgent medical needs. We posted this because friends of Liisa submitted the fundraiser here: http://meaction.net/promote-your-action/ We may need to create a policy if there are a large number of fundraisers, but for now we are happy to share when people in the community submit. We think in addition to helping the individual patient, it helps to draw attention to the challenges severe patients without adequate financial or family support face.
We are happy to ask for help for anyone who needs it.
Hi MEAction,
One thing that maybe of interest is obtaining members info that are suffering, the severe bedbound cases.
This does a couple of things:
-it provides the severe cases with an opportunity to recieve donations.
-It helps build a list of all completely bedridden patients for future research (like the OMF Study).
-it gives MEAction the oportunity to represent a new member weekly
Just a thought as all people in these situations should have the oportunity to recieve proper care.
Thanks
Thank you so much for posting this, and I truly hope that all bedbound people without support are able to find help through MEAction and crowdraising sites like Tilt.
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