Thirty U.S. House representatives signed a letter last week urging their colleagues on the House Appropriations Committee to attach language to its report on the fiscal year 2018 budget that encourages the NIH, CDC and HHS to accelerate and enhance its work in research and education for ME/CFS.
Renegade disability guide for Myalgic Encephalomyelitis
The National Institute of Health’s RFA for ME/CFS Collaborative Research Centers breaks new ground. For the first time, the funding agency is strongly encouraging researchers “to establish partnerships with patients groups and solicit their input” as part of their research plan.
#MEAction assembled a team of volunteers to assist researchers in
#MEAction is working with musician Kaeley Pruitt-Hamm to re-release her music video, “Believe Her,” to showcase the broader face of the ME community.
Send in a still photo or 5-second clip of yourself in bed holding a sign that says #BelieveME or #BelieveHer by April 30th. We will include these
Scientists in Canberra and Melbourne have just published a study claiming to have found that activin B is a biomarker for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).
Participants with ME/CFS were recruited using the Canadian Consensus Criteria.
The University of South Australia will begin a research study that looks at how active video gaming can increase physical activity in adults with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis.
The study has no set research criteria, despite studies that show 2 out of 5 patients are misdiagnosed with CFS/ME in Australia.
We are seeking a smart, strategic and driven candidate with 5-7 years of professional experience who is interested in a growth position as our Deputy Director.
The plight of people living with Myalgic Encephalomyelitis (ME) was heard in Illinois this week.
The parent of a young daughter with ME, Amy Mooney, worked with her state representative, Michael J. Zalewski, to introduce a state resolution that recognizes ME as a tragic, disabling disease, and that commits to improving the availability
On Thursday, April 20, Solve ME/CFS Initiative (SMCI)'s research webinar series will be a double feature with Dr. Susan Levine and Dr. Jose Montoya at 10 a.m. PT/ 1 p.m. ET.
Dr. Levine is founder of the Medical Office of Susan M. Levine, MD. Over the last two decades, Dr. Levine has collaborated
One of the best ways to advance research toward finding answers about neurologic disorders is through post-mortem brain donation - and the U.S. National Institutes of Health (NIH) reports an urgent need for donations from patients who’ve suffered with Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS). Arranging in advance to donate
There is one more screening of Unrest at the CPH:DOX film festival on March 24th, and then Unrest heads to the RiverRun International Film Festival in Winston-Salem on March 31st.
Unrest made its international and European premiere in Copenhagen, Denmark at CPH:DOX, one of the leading festivals for documentary film in the
Australian Senator Scott Ludlam asked about the progress of proposals to research ME and CFS and what can be done to educate GPs to prevent harmful treatments.