#BedFest is an international art, performance and music festival created by people with Myalgic Encephalomyelitis
Jessica Taylor-Bearman has written a book called “A Girl Behind Dark Glasses” about her "forgotten years" of having severe Myalgic Encephalomyelitis (ME) for 11 years since the age of 15. Her book focuses on the four years she spent hospitalized during which she was unable to speak, eat or move
Biomarkers are a holy grail for ME/CFS because they have the potential to help diagnose disease, track disease progression or progress and help inform which treatments might help.
The need for biomarkers is immense and researchers will identify many possible ones. It is encouraging that there have been more possible biomarker reports
Thirty U.S. House representatives signed a letter last week urging their colleagues on the House Appropriations Committee to attach language to its report on the fiscal year 2018 budget that encourages the NIH, CDC and HHS to accelerate and enhance its work in research and education for ME/CFS.
Renegade disability guide for Myalgic Encephalomyelitis
The National Institute of Health’s RFA for ME/CFS Collaborative Research Centers breaks new ground. For the first time, the funding agency is strongly encouraging researchers “to establish partnerships with patients groups and solicit their input” as part of their research plan.
#MEAction assembled a team of volunteers to assist researchers in
#MEAction is working with musician Kaeley Pruitt-Hamm to re-release her music video, “Believe Her,” to showcase the broader face of the ME community.
Send in a still photo or 5-second clip of yourself in bed holding a sign that says #BelieveME or #BelieveHer by April 30th. We will include these
Scientists in Canberra and Melbourne have just published a study claiming to have found that activin B is a biomarker for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).
Participants with ME/CFS were recruited using the Canadian Consensus Criteria.
The University of South Australia will begin a research study that looks at how active video gaming can increase physical activity in adults with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis.
The study has no set research criteria, despite studies that show 2 out of 5 patients are misdiagnosed with CFS/ME in Australia.
We are seeking a smart, strategic and driven candidate with 5-7 years of professional experience who is interested in a growth position as our Deputy Director.
The plight of people living with Myalgic Encephalomyelitis (ME) was heard in Illinois this week.
The parent of a young daughter with ME, Amy Mooney, worked with her state representative, Michael J. Zalewski, to introduce a state resolution that recognizes ME as a tragic, disabling disease, and that commits to improving the availability
On Thursday, April 20, Solve ME/CFS Initiative (SMCI)'s research webinar series will be a double feature with Dr. Susan Levine and Dr. Jose Montoya at 10 a.m. PT/ 1 p.m. ET.
Dr. Levine is founder of the Medical Office of Susan M. Levine, MD. Over the last two decades, Dr. Levine has collaborated