More than 79,000 comments were submitted—and every one must be reviewed by CMS.

As Severe ME Awareness Month begins, we hold space for the 25% living with severe ME, plus new art, a community webinar, and a reminder to care for yourself.

#MEAction has submitted its official public comment to the Centers for Medicare and Medicaid Services (CMS) about their new Medicaid work requirements regulations. There are just a few more days for you to submit your own public comment before the deadline at 11:59pm EST on Friday, July 31st. You don’t need to be a policy expert to make your voice heard. Use our easy template to share your story. Please support our work to help us continue the fight to recognize ME and Long C

This has been a remarkable month for #MEAction and I wanted to share the news directly with you.We are closer than ever to getting the ME/CFS Research Roadmap funded.Building on the Congressional relationships we developed in May through our partnership with #NotJustFatigue, #MEAction met with six offices of members of the Labor-HHS Appropriations Subcommittee over the last two weeks to request $50 million in dedicated funding for the ME/CFS Research Roadmap. We have received

25+ advocates join a complaint against Wired. Add Your name to the petition.

In just six months, #MEAction has taken on some of the biggest issues facing people with ME and Long COVID. A small, dedicated staff, an extraordinary group of volunteers, and generous donors like you have gotten us here. I want to take a moment to tell you what we have accomplished together, because celebrating our collective work is important. We Showed Up Around the World This year, the #MillionsMissing campaign was amplified globally. From Brazil to France, the UK to Mex

Funded by the Whittemore Peterson Institute (WPI) and Mayo Clinic, the project will develop the first nationally applicable clinical guidelines for emergency department care of ME/CFS and Long COVID patients

Juneteenth is a moment to celebrate freedom and reckon honestly with who that freedom has and has not reached. For the ME and Long COVID community, that reckoning is personal.

People with ME and Long Covid should be exempt from work requirements, period. Join our fight.

Submit your work and join us for this year's Severe ME Artists Project!

Communities living with energy-limiting, “invisible” chronic diseases are deeply concerned by the Centers for Medicare & Medicaid Services (CMS) interim final rule released last week that will make it even more difficult to receive exemptions from Medicaid work requirements than previously laid out in HR1 last fall. The interim rule will make the process of receiving work requirement exemptions more difficult for people with ME/CFS, Long COVID, and other infection-associated

Medicaid work requirements exemptions are being restricted

“You have a friend inside,” she told ME and LC advocates at the May 12th D.C. action.

A $44,000 grant is waiting. Help us unlock it.

Nearly 4,000 of you signed our letter to Secretary Kennedy calling on HHS to protect Medicaid access for people with ME and Long COVID.

We built key relationships to protect Medicaid for ME and Long COVID. Now we need your help to keep going.

On May 12th, the ME/CFS and Long COVID community are gathering outside the Department of Health and Human Services to call on HHS policymakers to intervene before tens of thousands of people with the debilitating diseases of ME/CFS and Long COVID lose access to the healthcare they need to survive.

ME awareness month is here. Here's how to show up (at whatever battery level you have).

Give today and your donation will be matched up to $15K!

Join our fight to protect Medicaid for our community!