Why #MEAction is Taking Action towards the CDC on Two Fronts

Share on facebook
Share on twitter
Share on email

#MEAction has announced two CDC-related advocacy actions today and yesterday. 

We are asking you to contact your Senators to increase research funding for ME through the Centers for Disease Control and Prevention (CDC), AND we have also published an open letter to the CDC calling them out for insufficient transparency and accountability in their regular stakeholder engagement calls with the ME community.

Since our inception, #MEAction has spoken out both about the inequity of funding allocation and the government’s failure to make ME a priority. We have consistently fought for increased research dollars, more informed clinicians, and meaningful stakeholder involvement in federal agency programs.

We simultaneously advocate for more funding for federal agencies to address our priorities, and work to hold those agencies accountable to the community and pressure them to do better.  We are are doing both of those things over the course of 24 hours! 

This dual approach is intentional. We need to work both within existing structures of federal agencies in order to achieve important goals like a nationwide epidemiological study, and at the same time hold them accountable to the community. We must always demand excellence. We know that there isn’t time to waste. People with ME deserve active, accountable federal agencies to provide treatments, quality care and, one day, a cure.

As we announce both of our CDC actions – a request to contact your Senators and a letter to the CDC – we know you care deeply about both things: obtaining increased research funding, and holding the CDC accountable for its actions towards the ME community.

We work within imperfect structures and institutions. Knowing that, we have to make effective strategic decisions so that people with ME get the care, treatment, and research they deserve.

We ask you to take the actions today, to help us get a step closer to equitable funding for ME research.

 

[maxbutton id=”17″ url=”https://act.meaction.net/page/11376/action/1?ea.tracking.id=web” text=”Contact your Senator” ]

 

[maxbutton id=”15″ url=” https://www.meaction.net/2019/06/05/we-need-effectiv…agement-from-cdc/” text=”Read our Letter to the CDC” ]

 

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

NHS England omits advice to apply clinical judgement re vaccine

It has come to light that a letter from NHS England and NHS Improvement to all vaccination centres and GPs in the UK has omitted advice that health professionals can and should apply their clinical judgement when placing people in group 6. Vaccination of people with underlying health conditions that put them at risk of

Read More »
Waiting for Superman Book on table

Waiting for Superman – UK Book Giveaway and Review

Do you want to win a free copy of Waiting for Superman? We have three copies to give away to people in the UK!  To enter, all you have to do is follow #MEAction UK on Instagram, like and comment on this post. The deadline is 9am (GMT) Monday 8th March! Win a copy! Thank

Read More »
#MEAction activists outside Scottish Parliament

Scottish Election! Ask your MSPs to support people with ME

If you live in Scotland, please join our campaign to ask your MSPs to pledge their support for people with ME. Email your MSPs The Holyrood elections are coming up on 6 May 2021 and we want to make sure that MSPs are aware of ME and the desperate need for support. There are more

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top