I’m angry, but I’m not alone. 

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I’m angry, but I’m not alone. 

Hi, my name is Ben HsuBorger, Director of Global Community and Campaigns for #MEAction, and I’m a person living with myalgic encephalomyelitis for over 14 years.

I’m deeply grateful for the community and tribe I’ve found at #MEAction that remind me I’m not alone — and I want to help others find community among our global network of ME activists.

We’ve done a lot together in the past few years that I’m so proud of, but looking ahead, what I want everyone to know is this: I AM STILL ANGRY.

I’m angry at my government’s abandonment of those of us who live with ME, and all the needless suffering — and death — that neglect has caused.

Governments around the world have shown us they still lack the urgency and commitment needed to deliver diagnostics and treatments for millions of people with ME whose lives and futures hang in the balance.

We must show them that we are not ok with the status quo.

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We are not ok with tinkering around the edges of this problem.

We are not ok with incremental change, when people who have waited decades still have no meaningful access to treatment and care for this disease.

Those who hold our healthcare in their hands must be put on notice that we will not be ignored.

It isn’t going to be easy, but our anger and our solidarity IS the solution. We must organize, and fight and then we organize some more.

Help us keep doing that by donating to #MEAction’s work today.

I know I’m not alone in my anger at this crisis.

So please, join us in building the health equality movement we need to demand the change we deserve.

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