What: The Ehlers-Danlos Syndrome (EDS) Society is recruiting individuals to participate in a genetic evaluation study. ME/CFS and EDS have a range of similarities and overlap. EDS is a connective tissue disorder in which musculoskeletal pain, joint pain/hypermobility, and fragile skin are considered common manifestations.
Who: 1000 individuals with Hypermobile EDS as well as their family members are needed for this study.
When: recruitment begins in June and runs until August.
Where: recruiting centers will be located in Baltimore and Nashville.
How to participate: for a detailed list of scheduled recruitment dates please visit the official recruitment webpage.