Take Action Virtually with our White House Protest

On Thursday, December 1st, World AIDS Day, HIV/AIDS, ME/CFS and Long COVID activists are taking action at the White House to demand funding for critical global and domestic health measures to keep our communities safe.

Here is how you can join us virtually.

Use our digital tool to easily email protest demands to President Biden and Congressional leadership. Among our list of joint demands, we’re calling on President Biden and Congress to “announce the creation of a Domestic and Global Response Plan for Long COVID and Associated Diseases [e.g. ME/CFS] with the funding, policies, programs research, and accountability to directly impacted, independent communities required for impact.”

Watch & Share the Protest Livestream

Our partner, Health Gap, will live stream the Dec. 1st  12pm ET protest at the White House from their social media accounts on Twitter or Facebook channels (UPDATE: links have been updated to a recording of the White House Protest).

Use the World AIDS Day Social Media toolkit to help spread our message online. You’ll find hashtags, sample tweets, and graphics related to HIV/AIDS, COVID-19, Long COVID and ME/CFS such as:

COVID never ended and millions of people are experiencing #LongCOVID, #MECFS, and other chronic illnesses. #PandemicsAreChronic and we need long term solutions and care. Congress, please #FundPandemicPlans 


Latest News

Graphic of yellow canary over black and white photo of a coal mine. Text reads "Canary Corps"

CANARY CORPS – Alison’s Story

Have you registered yet to join us this Wednesday, December 6th at 4pm ET / 1pm PT for a community presentation introducing the Canary Corps program? Ahead of Wednesday’s event we wanted to share with you Alison’s story. Alison Sbrana will be co-presenting this event, and much of the design of Canary Corps has been

Read More »
A rectangle image with a blueish/purple background. The words, "A Year of Exciting Medical Education Achievements" is in white font on the left hand side with the #MEAction logo underneath. On the righthand side is an image of Jaime Seltzer with a step and repeat and poster at the SDMI conference.

A Year of Exciting Medical Education Achievements

A year ago, we were proud to announce that #MEAction and Mayo Clinic Rochester had won a grant for diagnostic improvement, with Ravindra Ganesh, and Stephanie Grach, and I on the grant as co-investigators. Our project, Improving Diagnostic Accuracy of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Through Implementation of an Enhanced Education Protocol and Care Process Model

Read More »
a light orange rectangle with a burnt orange outline. in the box, there are orange flag garlands hanging in both top corners with orange confetti in the middle and at the top. in the bottom corners fall leaves. in the middle of the box the word, "OUR BOLDEST THANKS" in burnt orange. the #MEAction logo at the bottom.

#MEAction Shares Our Thanks for Your BOLD ACTIONS

During this time of thankfulness and gratitude, #MEAction staff wants to share what BOLD ACTIONS we are thankful our volunteers and community have taken throughout the year. We thought we could reflect together on all that we have accomplished this year and how every single one of us is important in this powerful community. A

Read More »