#MillionsMissing 2022: Activism From Home Was Beyond Impressive

There has been so much happening since the #MillionsMissing protest on September 19th. We’ve shared some of our amazing press wins. You tuned into the live stream on Twitter. You saw the article that cover our government’s response. We are thrilled. 

And we want to take a moment to acknowledge all of the amazing activism from home that happened on or around September 19th. 

Activism from Home then a list of items in red box with check marks near them. List of items: 9000+ people tuned in live with over 26,000 viewers total. 1050+ many people took the email to target action. 270+ many people took the tweet to target action. 1500 new followers across our social media accounts 1.5 + million impressions on Twitter. 2022 #MillionsMissing logo is underneath

We saw #LongCOVID and #COVIDIsNotOver trending online. This is no small feat with all that was going on that day! 

Our reach was massive thanks to you. We know for a lot of reasons not everyone could be in DC in person- and our movement is better because we have people doing a variety of actions in a variety of places.

We need to reach people in massive numbers because so many are becoming sick or have been sick for many years without the knowledge and support they deserve. But it is important to remember that each number represents a person who needs to hear our message. Maybe it is someone newly ill and feeling alone and confused. Another might be a healthcare provider or researcher who can now do better work because of their knowledge. Maybe one was a concerned loved one who did not understand until something they saw or read just clicked. Perhaps another is a philanthropist willing to donate to a worthy cause. Whatever brought you to our community we are glad you are here.

Throughout the day, we saw so many great posts on Twitter, Instagram, and Facebook. Our notifications were blowing-up!  ​Whether you did a one spoon activity or worked your way up to the 5 spoons action, we thank you for using your precious spoons to take action with us!

While we could not possibly share posts all with you today, but make sure to check our Instagram Story Highlights of the day for even more posts.

Here are a few highlights:

For those that took action from home, we are filled with gratitude for you. And as always, if you were not able to do anything around this event, you are no less meaningful to our movement.

We stand in awe of this community. Thank you.


Latest News

A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

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