NIH Extends Funding for ME/CFS Research Centers

The National Institutes of Health (NIH) has taken steps to fix a “funding gap” in the timing of research awards for the ME/CFS Collaborative Research Centers (CRC) and the Data Management and Coordinating Center (DMCC). The currently-funded research centers which apply, and are approved, for another 5-year term will no longer face a 7-month funding gap between research awards.

In February, #MEAction criticized NIH for issuing the latest ME/CFS CRC funding announcement for:

  1. not increasing funding so that the number of CRCs could be expanded, and 
  2. leaving a gap in funding between the end of the current awards (August 2022) and the start of any new awards (April 2023).

To be sure, the failure of NIH leadership to investment in the number and size of research centers needed to accelerate ME/CFS research is a serious missed opportunity; but we are also glad to see the administrative efforts of NIH program staff to support the current research centers through the “gap” period using a combination of grant extensions and supplements so that researchers can complete their studies, perform data analysis and prepare manuscripts for publication. 

Columbia University’s ME/CFS CRC received a 1-year extension (August 31, 2023) to their current award with an additional $658,746 in total costs funding. According to Prof. Ian Lipkin the project’s principal investigator:

“The bridge funding is important to completing our research commitments to the community and to the NIH. It will also allow us to retain the focus of the team on ME/CFS so that in the event we are successful in our renewal application, we will be able to maintain momentum rather than first need to rebuild the team. We have exciting new findings in immunology, microbiology, and genetics that offer the prospects of building animal models for disease and designing clinical trials. We are eager to continue our work and to partner with #MEAction in bringing insights and solutions that will mitigate disability in ME/CFS.”

Below are the funding extensions and supplements that NIH has implemented for the ME/CFS research centers:

Awardee Center Type Funding Mechanism Additional Funding Extended Until Note
Columbia CRC For-cost extension $658,746 08/31/23 Extension date not yet shown in NIH RePORTER
Cornell CRC No cost extension N/A 08/31/23 Using funds previously awarded
JAX Labs CRC No cost extension N/A 08/31/23 Using funds previously awarded
JAX Labs CRC Administrative Supplement $90,800 08/31/23 Funding for additional work
RTI DMCC No cost extension N/A 06/30/23 Using funds previously awarded
RTI DMCC Administrative Supplement $99,999 03/31/23 Funding for additional work

Note: This information is publicly available in NIH RePORTER. The above links to individual funding mechanisms include more information, including an abstract of the work and related research publications.

The ME/CFS Collaborative Research Center (CRC) program was first launched by NIH in 2017. The new 5-year CRC funding opportunity and DMCC funding opportunity had to be applied for/resubmitted by this past May. CRC and DMCC applications will be reviewed in November 2022 and the funding plan will be presented at the NINDS Advisory Council on February 1-2, 2023.

The current CRCs are working with the DMCC to upload their data into mapMECFS so it will be accessible to other researchers once the publications have been released.


Latest News

DHSC released a new progress Report

DHSC has released an update on the progress of the work underway to support the development of a Delivery Plan on Myalgic Encephalomyelitis / Chronic Fatigue. This is dated from December 2022.You can read the full report using the link below: DHSC Information Bulletin Dec 22 FINAL MECFS updated

Read More »
Gold fireworks lighting up over a black background. The words, TOP HITS 2022 is in the center in white lettering. the words: #MEAction accomplished a lot last year is undernether with the #MEAction logo

Let’s Look at #MEAction’s Top Hits from 2022

As we ring in the new year, it is a wonderful time to reflect on how much #MEAction accomplished in a very busy and exciting 2022! There are so many wins to share, so we decided to narrow down the list to our TOP HITS! ——————- #MILLIONSMISSING 2022: * Bringing together the powerful Virtual #MillionsMissing

Read More »
A photo from Millions Missing Scotland of a group of 20 protestors outside the Scottish Parliament. They’re looking serious and holding signs that say Millions Missing, and a pledge signed by MSPs. Many are wearing red ME Action t-shirts. A yellow icon of a person is overlaid next to them with an arrow pointing to it and the words ‘Could it be your MSP?’ A red banner along the bottom says ‘Share your story and ask your MSPs to stand up for people with ME.’

Ask your MSPs to stand up for people with ME

Sue Webber MSP’s motion about ME will be debated in the Scottish Parliament on Thursday 2nd February – and your MSPs should be there! The motion calls on the Scottish Parliament to recognise the outcomes and recommendations of the stakeholder report on ME, including education of healthcare professionals and development of specialist services. We’re pleased

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.


Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Scroll to Top