Meet the Long Haulers Developing ME/CFS

#MEAction sent out a press release last week to 300 major publications in the US introducing them to the long haulers who are experiencing symptoms of myalgic encephalomyelitis (ME), specifically post-exertional malaise.

We alerted the press to the terrifying possibility that 1 million more Americans could develop ME following COVID-19 at the current rate of the pandemic over the next two years.

We educated the press about the risks that graded exercise can pose to people with ME, especially as we see more and more long COVID clinics prescribe exercise to long haulers without making it clear if they are distinguishing between patients with POTS symptoms and patients with ME symptoms.

The press is talking about long COVID daily and we are working hard to ensure that ME is part of that conversation, and that the facts are correct.

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