Meet the Long Haulers Developing ME/CFS

#MEAction sent out a press release last week to 300 major publications in the US introducing them to the long haulers who are experiencing symptoms of myalgic encephalomyelitis (ME), specifically post-exertional malaise.

We alerted the press to the terrifying possibility that 1 million more Americans could develop ME following COVID-19 at the current rate of the pandemic over the next two years.

We educated the press about the risks that graded exercise can pose to people with ME, especially as we see more and more long COVID clinics prescribe exercise to long haulers without making it clear if they are distinguishing between patients with POTS symptoms and patients with ME symptoms.

The press is talking about long COVID daily and we are working hard to ensure that ME is part of that conversation, and that the facts are correct.

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#MillionsMissing 2022: Activism From Home Was Beyond Impressive

There has been so much happening since the #MillionsMissing protest on September 19th. We’ve shared some of our amazing press wins. You tuned into the live stream on Twitter. You saw the article that cover our government’s response. We are thrilled.  And we want to take a moment to acknowledge all of the amazing activism

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Tell HHS about your experience of healthcare discrimination

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