APPG on ME – Next meeting scheduled

The All-Party Parliamentary Group (APPG) on ME will be resuming work on their report at a virtual meeting on Tuesday 16th June. This meeting will cover issues relating to children and adolescents with ME – including diagnosis, medical management, education and inappropriate social services interventions.

There will be three presentations from:

  • Dr Nigel Speight – Consultant Paediatrician and Medical Adviser to The ME Association and TYMES Trust
  • Tony Crouch – Paediatric social worker and social work adviser to TYMES Trust, 25% ME Group, Hope 4 ME and Fibro NI. 
  • A parent of a child with ME

The presentations will be followed by discussion and questions from MPs.

This meeting follows the AGM which took place in January and the first meeting (focused on biomedical research), which was held in March.

Encourage your MP to attend

Please do encourage your MP to attend this meeting, especially if you haven’t been in touch with them about the APPG. You can find an email template here. We suggest you refer all MPs to Carol Monaghan’s office for more information: [email protected]

Facebook
Twitter
WhatsApp
Email

Latest News

Image features newspappers folder up and stacked together vertically. There is a red box in the center that has the words, Why We Keep Telling the Story of ME to the Press in white and the #MEAction logo in the righhand corner of the box.

Why We Keep Telling the Story of ME to the Press

Our press work continues to drum a strong beat as we tell the story of ME everyday to the media. We will continue to fight for our community’s decades of expertise living with, treating and researching ME to be heard, and integrated into our government’s Long COVID response. We refused to be erased from the

Read More »
the words " #MillionsMissing 2023: Scotland calls for healthcare education" appear in white on a red-muted background with the #MEAction Scotland UK logo in the bottom right hand corner.

#MillionsMissing 2023: Scotland calls for healthcare education

This year, #MEAction Scotland’s #MillionsMissing campaign focussed on raising awareness of the reality of living with ME and called for education and training for healthcare professionals to improve support for people with ME across Scotland. Ahead of ME Awareness week, we put out a call, alongside #MEAction UK, to ask members of the ME community

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top