Stanford Medical Students Watch Unrest

Many thanks to folks at Stanford University for screening Unrest with #MEAction twice this month to educate health care professionals and medical students.

Medicine & the Muse sponsored the first screening on October 15th with many medical students in attendance asking thought-provoking questions about ME/CFS. Read this great article in Stanford Daily

The Medicine & the Muse Program is the home for the arts and humanities at the medical school, with programs that support diversity and integrate the arts and humanities into medical education, scholarly endeavors, and the practice of medicine.

The facilitator, Dr. Jonathan Berek, thanked Jennifer Brea and Laurie Jones for coming to discuss the film. He added,” Very informative and I must say that I admire you very much for your work and your courage, as I said, it also kind of reminds me of how important it is for all of us in medicine to listen to our patient advocates and to include our patient advocates in all of our activities, when we’re teaching when we’re developing educational programs and outreach programs in my area of oncology, that’s, that’s, I think, essential to hear from our from our patients.”

Jonathan Berek reflected #MEAction’s values right there. We fight so hard for patient advocates to be at the table and hearing those words brought music to our ears, and we want to share it widely.

The Stanford Medicine Abilities Coalition screened the film again on the 31st with a robust panel discussion!

The discussion was moderated by Terri L. Wilder, MSW. Panelists included the filmmaker, Jennifer Brea; Dr. Ron Davis; Dr. Jennifer Curtin; and former nurse and pwME, Ashanti Daniel.

The Stanford Medicine Abilities Coalition (SMAC) is composed of people who have disabilities and their allies. Membership is open to everyone at Stanford Medicine, including Stanford School of Medicine, Stanford Health Care, University HealthCare Alliance (UHA), Lucile Packard Children’s Hospital Stanford, Packard Children’s Health Alliance (PCHA), and Stanford Children’s Health.

Dr. Peter Poullos and the Stanford Medicine Abilities Coalition advocates for greater inclusion for people with disabilities at Stanford and are recruiting more medical practitioners with disabilities as well. The discussion prompted lots of questions about research, practice, long COVID, and personal experience.

#MEAction is so grateful for these two screenings and for Stanford University and all of the organizers (including Terri, Kristian, Daniel, Christy and many others) for bringing the topic of ME/CFS to such a prestigious university. 

 

To share Unrest with your clinician, you can have them take the CME opportunity here

To host a screening of Unrest through #MEAction, learn more here:

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A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

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