Join the #MillionsMissing this Sept — Bigger. Louder. Stronger.

Share on facebook
Share on twitter
Share on email

On May 25, 2016, we did something extraordinary together: we held the largest, loudest protest ever held for ME/CFS.
We came out in force: in Boston, Dallas, San Francisco, Seattle, Washington D.C., Raleigh, and Atlanta; in London; in Melbourne; in a Canada-wide virtual protest; in Bergen, Norway; and in Belfast, Northern Ireland.  Impromptu shoe displays popped up in Ottawa and the Netherlands.  Thousands of patients, caregivers, clinicians, and stakeholders raised their voices together to demand better funding, better medical education, and government oversight for this overlooked, underfunded illness.
We received unprecedented media coverage for the protest.  We met with our government officials as part of a coordinated effort from multiple advocacy organizations, meeting with over 20 U.S. Congress members and numerous HHS officials to discuss the demands, and the way forward.
And we can and will do more.  We can and will get louder.  We can and will be stronger.
Join the protest September 27, and raise your voice up alongside thousands of others until it shakes the government and the public awake.  Let them know that anyone can get this illness.  It is a public health emergency.  And we can all do something about it.
 
Email
 
Want to lead a protest?  #MEAction can help get you oriented and provide you with materials.
Email [email protected] if you are interested in leading a protest!
Not sure you can handle it on your own? Assemble a small team of leader-volunteers in your area.
Or, click below to join our Facebook #MillionsMissing volunteer group!
[button_color url=”https://www.facebook.com/groups/1095615747187468/” content=”Join our Volunteers!” target=””]  
Save
Save
Save

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on email
Email

5 thoughts on “Join the #MillionsMissing this Sept — Bigger. Louder. Stronger.”

  1. Kristina Schwende

    I was going to join your FB page but it’s still pointing to the May 26 volunteer group. I want to do what I cancan, but I’m not well enough to lead a group. I also live in a very remote area so joining the FB page would probably be best.
    Is this pointing to the correct page? If so, I’ll put in my request to join. Thanks for your help!
    Kristina
    Walhachin, British Columbia

    1. We will still use the same Facebook group as we did last time, Kristina — it will save previous volunteers the trouble of re-signing up for a new group! Thanks for getting involved!
      -J

      1. Kristina Schwende

        Thank you for letting me know. I submitted my request to join so I’m assuming I just need to wait until my request has been approved.

        Thanks again for your help. I am VERY grateful for people like you who are working hard for BIG changes in how ME-CFS is diagnosed and treated, as well as education for the medical community and the public at large.

        God bless each and every one of you.

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

In Memory of Dr. Ronald G. Tompkins MD, ScD

Mourning the loss of Dr. Ron Tompkins

Today #MEAction joins the community in mourning the loss of Dr. Ronald G. Tompkins, MD, ScD, who passed away this week. Ron Tompkins was a clinician, clinical researcher, and friend and ally to people with ME. He was the Sumner M. Redstone Professor of Surgery at Harvard Medical School, Founding Director of the Center for

Read More »
National Institutes of Health campus buildings from above

NIH Long COVID research lacks clear plan to identify and track ME/CFS

MEAction has written to the National Institutes of Health (NIH) expressing our deep concern that the RECOVER Initiative research agenda lacks a clear plan for how to accurately identify or consistently track the onset of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) cases among patients with Long COVID. This is of particular importance because a sizable fraction

Read More »

The Last Two Years Changed the World…

What a year 2021 was! People with ME have always faced formidable challenges: every day combatting stigma, lack of understanding from clinicians, NIH’s and CDC’s low budgetary commitments, and a world of challenges navigating disability on top of symptoms.  It’s no exaggeration to say that 2020 and 2021 changed the world – and the world of chronic,

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top