Urgent Action Needed: Demand NIH Fund the ME/CFS Research Roadmap!
October 10, 2024
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Author: #MEAction
Submit Long COVID Drug Recommendations to RECOVER-TLC!
October 7, 2024
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Last month, RECOVER TLC met at NIH headquarters in Bethesda. The goal was to initiate a drug development strategy for Long COVID clinical trials. Now, RECOVER TLC has opened the RECOVER-TLC Intervention Information Request Form, where you can make suggestions about which drugs and other interventions to trial! Anyone can submit a therapeutic for consideration
Pillow Writers Anthology, Issue 1: Near-Life Experiences Available Now!
September 18, 2024
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The Pillow Writers Anthology, Issue 1: Near- Life Experiences is a new literary magazine in the disability community. This inaugural issue features poems, stories, and essays by 17 writers who call themselves the Pillow Writers. The Pillow Writers are an international group of writers living with the neuro-immune diseases of myalgic encephalomyelitis (ME) and Long
#MEAction UK’s annual report Oct 2022 – Oct 2023
September 16, 2024
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Download #MEAction UK’s annual report covering what we’ve done in the year Oct 2022 to Oct 2023.Download now (PDF 5.3MB)
#MEAction UK’s email/letter to Andrew Gwynne MP
September 16, 2024
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To: Andrew Gwynne, Under Secretary of State for Public Health and Prevention Subject: Treatment of Very Severe ME email [email protected] Dear Andrew Gwynne, Thank you for being an ally to people with ME (myalgic encephalomyelitis) and Long Covid and committing to ensuring publication of the DHSC ME/CFS Delivery Plan without more delay. We trust your
#TeachMETreatME: We Can’t Believe These Numbers
September 4, 2024
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We tallied up some numbers from our #TeachME, TreatME campaign to educate clinicians and medical students about ME, and the results are fantastic! The campaign has been a herculean effort by #MEAction staff and our 16 incredible teams across the U.S and U.K., and we are beyond proud! And, the campaign is ongoing! You can
#TeachMETreatME: Share the Mayo Clinic CME With Your Doctor
August 30, 2024
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We encourage you to share the Mayo Clinic Proceedings Continuing Medical Education (CME) course on ME/CFS with your doctor! It is a wonderful opportunity for your clinician to get their continuing education credits, and learn about ME at the same time! Clinicians are often appreciative to receive these materials! We’ve created an email template for you to
#MEAction Awarded 3-Year Grant by Minnesota Department of Health Long COVID Program
July 30, 2024
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Breaking news! #MEAction has just been awarded a 3-year grant by the Long COVID Program of the Minnesota Department of Health (MDH) to address the impacts of Long COVID, ME/CFS, and related conditions, across the state and to serve disproportionately impacted communities. #MEAction’s work will focus on better connecting Minnesotans with ME/CFS, Long COVID, and
Severe ME Artists Project 2024
June 26, 2024
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Quick Overview: Submit one piece of artwork – image, writing, or video Label your artwork with your name as you want it to appear, an underscore, and the number of years with severe ME Example: Lastname_FirstName_14 FirstNameOnly_ No copyrighted material If you are submitting a video, it must be under two minutes. Submission due by
Pride Is Valid No Matter How One Celebrates or Experiences It
June 25, 2024
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In honor of Pride Month, #MEAction is sharing a heartfelt message from our board member, Jennifer England, about what Pride means to her and her wife who lives with severe ME. My wife and I have both been queer our whole lives, but in the 70s that was the quiet part you didn’t say out