Research Roadmap Petition
May 7, 2025
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We reached 7,000 signatures on our last letter. This time, our goal is 10,000. Please sign the letter today and share it with your friends and family.
Author: #MEAction
SOS: #MEAction Responds to Urgent Crisis – MN Long COVID Funding At Risk
May 7, 2025
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At 5:00 pm Eastern time yesterday, we found out that the Minnesota house would be voting on a bill that would remove funding to all Long COVID grants, including #MEAction’s grant, which allows us to provide direct support to people with ME and Long COVID. This is yet another SOS moment for people in our
Share This SOS Image On Your Socials
April 28, 2025
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Please help us spread the word! Share and interact with #MEAction’s social media (we are @meactnet) and share this amazing artwork (above ⬆️ ) and a message about #MillionsMissing with your own networks. Desktop: Download by right clicking on the image or clicking on the download icon in the bottom right corner of the image. Mobile:
#MEAction: Congress Is Hearing from Us
April 23, 2025
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#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap, Medicaid, and telehealth. We’ve been partnering with #NotJustFatigue on setting up congressional meetings in order to ask our elected officials for their support in making funding of the ME/CFS Research Roadmap a reality. #MEAction State Chapter
#MEAction Georgia Volunteer, Maggie Boxey, Speaks at TEDxOjai
April 21, 2025
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#MEAction Georgia recently had a huge accomplishment. Maggie Boxey, who is a member of the Georgia State Chapter, a Navy veteran, and a published author, recently gave a Tedx talk about her experience as a person with ME. Maggie was diagnosed a year ago but has been sick since 2020. Before becoming sick Maggie and
Why We’re Sending out an SOS this #MillionsMissing
April 8, 2025
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On May 12th, #MEAction and the #MillionsMissing are sending out an SOS to Congress to Save our Support Systems. Save our Science. Save Our Society. HERE’S WHY: Healthcare, research funding and accessibility were already incredibly fragile for people with myalgic encephalomyelitis (ME), Long Covid and the disability communities. Now, we are seeing constant threats to
Writers Guild Initiative Writing Workshops: Apply Today
April 4, 2025
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#MEAction is excited to announce we are partnering with the Writers Guild Initiative (WGI) again to offer creative writing workshops for people with ME and Long COVID**. WGI has graciously donated their time to offer these writer workshops through personal mentorship with the writers of the #MEAction community! The workshops consist of three sessions during
Virtual Interview + Q&A with Stuart Murdoch
April 3, 2025
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Stuart Murdoch, from the band Belle and Sabastian, will be interviewed by #MEAction Minnesota’s State Chapter Leader, Terri L Wilder, about his recently released novel, Nobody’s Empire, on Saturday, April 19th at 1pm ET/6pm BST. We hope you join us for this virtual event to learn more about his debut novel. Tickets are available for
#MillionsMissing 2025: Sending Out An SOS
April 2, 2025
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For #MillionsMissing 2024, #MEAction is sending out an SOS.
White House Halts Funding for Long COVID Grants
March 27, 2025
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The White House is terminating funding for NIH RECOVER grants awarded in 2022 and 2023 for Long COVID.