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Tag: Myalgic Encephalomyelitis

Photo of staff members smiling at camera on a zoom call.

#MEAction’s Summer Work Heats Up

August 16, 2023 No Comments

Halfway through summer, we have so much to report about our immense, day-to-day work advocating for M.E., for you, and for each other.  On the medical front, our ongoing, grant-funded project with Mayo Clinic Rochester continues to transform medical education at Mayo. Together, we have updated the ME/CFS homepage, written a Concise Clinical Review article that will

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Image features newspappers folder up and stacked together vertically. There is a red box in the center that has the words, Why We Keep Telling the Story of ME to the Press in white and the #MEAction logo in the righhand corner of the box.

Why We Keep Telling the Story of ME to the Press

June 6, 2023 No Comments

Our press work continues to drum a strong beat as we tell the story of ME everyday to the media. We will continue to fight for our community’s decades of expertise living with, treating and researching ME to be heard, and integrated into our government’s Long COVID response. We refused to be erased from the

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#MillionsMissing Press Hits are Rolling In!

September 20, 2022 No Comments

The press hits are rolling in! The media showed up in a big way yesterday to cover our #MillionsMissing protest in front of the White House.   One day after President Biden declared the “pandemic is over,” our community was at the gates of the White House to send Biden a message that a pandemic of chronic

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