Severe ME Artist Project 2023 — Gallery
July 31, 2023
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A collection of works by artists with severe ME.
Category: Awareness
Facets of ME: Centering ME During the Holidays
December 8, 2022
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Welcome to the final #FacetsOfME for 2022, where we focus on centering ME during the holidays!
Facets of ME: Travel Tips
August 26, 2022
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Welcome to August’s Facets of ME! If you are unfamiliar, #FacetsOfME is a new #MEAction feature this year where we take time to explore one facet or aspect of myalgic encephalomyelitis (ME/CFS). Sometimes it is a symptom and sometimes it is a unique aspect many of us face living with ME. So far we have
Severe ME Artist Project 2022 — Gallery
August 2, 2022
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A collection of works by artists with severe ME.
Just In Time for the School Year: A New Pediatric Pacing Guide
August 2, 2022
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#MEAction is excited to share a new and much-needed resource just in time for back to school! We are so thankful to have our allies at Long Covid Families join us in developing the Pacing and Management Guide for Pediatric ME/CFS and Long COVID. Access the New Pediatric Pacing Guide Our Pacing and Management Guide
Top 10 ME/CFS Recommendations for the Long COVID National Research Action Plan
June 29, 2022
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#MEAction has been hard at work continuing to advocate to the Department of Health and Human Services (HHS) on behalf of people with ME and Long COVID since our last update in May. HHS has been directed by the White House to play a leading role in coordinating the response to Long COVID and associated
Facets of ME: Temperature Dysregulation
June 23, 2022
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Welcome to June’s #FacetsOfME! Facets of ME is an educational feature where we dive into a particular aspect (or facet) of ME and explore it more in depth. This month we are focusing on temperature dysregulation- heat and cold intolerance. It is surprising how difficult this symptom can be to manage until you experience it.
Dept. of Labor Updates Information on ME/CFS for Workers, Employers
June 21, 2022
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The U.S. Department of Labor’s Office of Disability Employment Policy (ODEP) has updated the information on ME/CFS provided at its Job Accommodation Network website to align with the most current CDC guidance. This action will help workers and employers find accurate information on ME/CFS and combat stigma and improve workplace outcomes. At #MEAction’s recent meeting
#MillionsMissing: 7 Days in Self Portraits with ME/CFS
June 21, 2022
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After taking #MEAction’s photography workshop with photographer Lucia Doynel for #MillionsMissing, Terra Dumont produced these stunning photos as a glimpse into her life as someone living with ME/CFS. Terra spread this experience over 7 days, focusing on a different theme each day. See her wonderful work and accompanying commentary below. Click on any of the
ME/CFS on TV (Part 3)
April 8, 2022
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RETURN TO PART 1 OF THIS SERIES HERE ME/CFS ON THE ITALIAN TV SCREEN: A VIRTUOUS MODEL by Giada Da Ros Through sundry television spaces (news, fiction, talk shows), the ME/CFS community challenged existing political, medical, and philosophical approaches to the illness (and to maladies in general). The community sought to re-appropriate the discourse, fight