Category: Awareness

OUR SUMMER IN REVIEW: ADVOCACY AND EDUCATION

What a Summer for Advocacy and Education!  We know the summer isn’t over yet, but A LOT has been happening with ME advocacy and education in the United States and the United Kingdom, and we want to make sure you are up to date, in the loop, and ready for next steps! National Institutes of Health (NIH)

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ME/CFS and Long COVID: What’s the Connection?

#MEAction hosted a seminar for post-COVID-19 “long haulers” on Friday, August 7, to learn more about ME/CFS as a potential diagnosis after viral infection, in partnership with Body Politic and the COVID-19 Working Group New York. Watch the seminar now!

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GOOD MORNING BRITAIN GETS IT WRONG ON POST-COVID TREATMENT AND ME

#MEAction UK has written a letter of complaint to Good Morning Britain in response to recent statements from Dr Hilary Jones on the programme, regarding the rehabilitation of long COVID patients. In his interview with Kate Garraway yesterday, Dr Jones recommended graded exercise as a strategy for those recovering from COVID-19. There is now a

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Adriane Tillman

Coming to Terms with My Disability

My husband often pushes me home in my son’s stroller because I have enough energy to get to the playground but not enough to get home. There are so many types of disabilities and so many ways to address them, and the disability rights’ activists of the 70s taught the world – and myself –

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National Disability Voter Registration Week

National Disability Voter Registration WeekJuly 13-17, 2020 #MEAction is excited to participate in National Disability Voter Registration Week!  Let’s get people with ME and all people with disabilities registered to vote, educated about this year’s election, and prepared to cast our ballots! We have gathered resources to help make it as simple as possible as

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ADA 30th Anniversary–Stories Wanted

The 30th of the anniversary of the American Disability Act (ADA) is fast approaching–July 26th. As a way to celebrate this momentous occasion, we are looking to share stories of how the ADA has positively impacted the lives of people with ME.We want to honor those who fought hard to make sure we have the

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Post-COVID research & clinical care must include ME/CFS

People with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have been concerned since the start of the coronavirus pandemic that a subset of COVID-19 patients will go on to develop ME/CFS. Unfortunately, we are already hearing from many COVID-19 survivors around the world that they are continuing to experience debilitating symptoms for many months, even after “mild”

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