Covid-19 Resources for People with ME

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Category Archives: Actions

National Disability Voter Registration Week

National Disability Voter Registration WeekJuly 13-17, 2020 #MEAction is excited to participate in National Disability Voter Registration Week! Let’s get people with ME and all people with disabilities registered to vote, educated about this year’s election, and prepared to cast our ballots!We have gathered resources to help make it as ...

#MEAction Supports Health Care at Home Act

#MEAction is excited to announce our support of the Health Care at Home Act, which increases telemedicine opportunities during the pandemic. Telemedicine enables people with myalgic encephalomyelitis (ME) to access their healthcare professionals without leaving home, which can mean the difference between being able to access a doctor or not ...

Accessible Ways for People with ME to Get Involved in Racial Justice

Accessible Ways that People with ME can get Involved in Racial Justice#MEAction has always focused on empowering and supporting our community. We know that many people with ME are wanting to show support for racial justice and it is often difficult to know how to engage from home. Here are ...
UK ME/CFS Biobank CureME logo

The UK ME/CFS Biobank: a rich resource of samples and data

It is a strange time to be writing about the work of the UK ME/CFS Biobank (UKMEB); as I write, our office has been closed for over two months and clinical visits have been paused indefinitely; samples cannot currently be distributed. COVID-19 has created many challenges to our work and ...
Millions Missing Banner

It’s #MillionsMissing Week!

It’s here. It’s #MillionsMissing week! Are you ready to gather allies, express your art, share your story, tune into some great performances, and celebrate our community?There is a lot to do, and you should only participate when and how you are able. Our numbers are mighty, so you are not ...

Saturday, March 28th: Crip Camp virtual screening and Q&A

At the Sundance Film Festival in January, I had the privilege of watching Crip Camp, a documentary film that premieres today on Netflix. It's about building a community in spite of a world that excludes you; that often tries hard to deny your humanity or ignore your very existence. It's ...
Medical Education Event London #MEActionUK

Invite your Doctor to learn about ME – Medical Education Event in London

March 11 Update: After thoughtful deliberation, we have made the difficult but necessary decision to postpone our Medical Education event in London, originally due to take place on April 1 at the LSHTM. We know how much this means to the community, and we did not make this decision in ...
Evelien Van Den Brink EU Petition

The EU Committee on Petitions is preparing a resolution on ME

Hi everyone! Time for an update: We have super important news! The Committee on Petitions is preparing a resolution on ME! This is the first-ever resolution on ME in the EU and if adopted, this means a great leap forward towards our goal of attaining funding for biomedical research on ...
Take ME Seriously

Another No from NICE – Take ME Seriously

As publication of new ME guidelines are delayed, NICE once again refuse to take action to mitigate the harmful recommendations that still stand in the existing guideline. Join us as we send them a giant card and tweet them so that they see the damage their guidelines have caused. Read ...