Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM). Today, ME/CFS does not exist in the US ICD-10-CM. Instead, most US doctors assign the code for chronic fatigue
Category: #MEAction Projects
Do you ever wonder where your money goes when donating to your favorite charity? We certainly do! Why? Because we want to make sure that every gift we receive generates the greatest impact in our collective fight for research, medical education, and public recognition of myalgic encephalomyelitis/chronic fatigue syndrome. This is why we wanted to
#MEAction is excited to share new pieces of work from the Writing From Our ME Lives writing group. Click on the buttons below to view their writing! Hope you enjoy their work. If you are interested in joining the next Writing From Our ME Lives meeting, they meet on every Thursday at 11am PST. Check
#MEAction is excited to announce our Severe ME Artists Project which will feature work from those within the severe ME community in honor of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase their artwork (whether it be writing, photography, drawing, singing, or any other medium that illustrates their talents) with multiple ways to participate based on a person’s energy levels.
Outreach to BIPOC communities has always been a challenge in ME/CFS. In a disease where diagnosis is so hard to come by, who gets a diagnosis is not a matter of prevalence but a matter of privilege. While community-based studies show just as many Black people get ME as white people, if not more, white
#MEAction is excited to share more work from the Writing from our ME Lives writing group!
#MEAction is excited to share two pieces of work from the Writing From Our ME Lives writing group. We will be sharing more work in the coming days! Hope you enjoy their work. If you are interested in joining the next Writing From Our ME Lives meeting, they meet on every Thursday at 11am PST.
Postcards to Doctors is going strong! Postcards to Doctors, which we launched in 2019, is a medical education campaign in the US that focuses on getting medical professionals to learn more about ME. Our aim is to get as many people as possible to take the UNREST CME course, and Postcards to Doctors has enabled us to reach
It’s a wrap! Last weekend concluded the final session #MEAction’s first ever ACTIVIST CAMP!, a teach-in series for activists in the United States. We are so proud of this program and what it has accomplished. Congrats to our new grads! #MEAction ACTIVIST CAMP! aimed to deepen our campers’ engagement with activism – teaching our collective