Happy Juneteenth from all of us here at #MEAction! Juneteenth commemorates June 19th, 1865 when slavery of African-Americans was officially enforced. To celebrate we have put together a summer reading list of books by disabled Black authors. Keah Brown is an American author who was born with cerebral palsy. She created the popular hashtag #disabledandcute
January 24, 2025 – Cochrane Library has made the shocking decision to abandon an independent analysis of its 2019 review of exercise therapy for myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) – and has altered the date of publication to make the review appear current when, in fact, its sources are 10 years old or
#MEAction and Long COVID Justice issued a press statement yesterday about our communities’ deep concerns regarding the rollout of RECOVER’s clinical trials for Long COVID. As studies show half of the Long COVID community meets the diagnostic criteria for ME/CFS – and our core symptoms overlap – RECOVER’s research has major implications for our community.
Halfway through summer, we have so much to report about our immense, day-to-day work advocating for M.E., for you, and for each other. On the medical front, our ongoing, grant-funded project with Mayo Clinic Rochester continues to transform medical education at Mayo. Together, we have updated the ME/CFS homepage, written a Concise Clinical Review article that will
Urge Congress to hold our federal health and research agencies accountable for ME & Long COVID.
Our press work continues to drum a strong beat as we tell the story of ME everyday to the media. We will continue to fight for our community’s decades of expertise living with, treating and researching ME to be heard, and integrated into our government’s Long COVID response. We refused to be erased from the
#MEAction has sent the following email to editors at New York Magazine to request it remove its fallacious article about Long COVID and ME.
#MillionsMissing France has been busy.
Post-viral conditions like ME/CFS provide guidance for estimating the economic impact of Long COVID.
Code change will ensure US can track diagnosed cases of ME/CFS in newly created electronic health records
