The #MEAction team will be taking memorial weekend off and will be out of the office until Tuesday!

Thank you for understanding!

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Category Archives: Country

Historic Congressional Resolutions for ME!

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Senate Resolution passed! This is a great victory for all people with ME ...

Enrolling: EDS Genetics Study

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What: The Ehlers-Danlos Syndrome (EDS) Society is recruiting individuals to participate in a genetic evaluation study. ME/CFS and EDS have a range of similarities and overlap. EDS is a connective tissue disorder in which musculoskeletal pain, joint pain/hypermobility, and fragile skin are considered common manifestations. Who: 1000 individuals with Hypermobile EDS as ...

We are building a movement at #MEAction UK. Join us!

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#MillionsMissing - organised by #MEAction - has been such a successful campaign this year, and we thank everyone in the ME community for your part in this. At #MEAction UK we are building a movement. We’ve grown #MillionsMissing, a campaign for health equality for ME, from a single protest in London ...

Enrolling: Stony Brook University ANS Study

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Who:  Researchers at Stony Brook University-- funded by the National Institue of Health What: The goal of this study is to use data obtained from participants to compare the relationships between fatigue, physical activities and autonomic function (heart rate variability). Individuals with ME/CFS as well as healthy controls are needed. Those who ...

South Carolina Raises Awareness about ME

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My name is Robert Jacobs, MD and I am a retired Physician and caregiver for my wife who has had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) for more than 9 years. Despite the historical, tourism and quality-of-life allure of this beautiful state, we discovered a paucity of medical care available to patients with ME/CFS, ...

Urgent – Contact Your Senators Now to Co-sponsor the ME/CFS Awareness Day Resolution

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Please contact your SENATORS and urge them to co-sponsor a ME/CFS Awareness Day Resolution NOW! Although the original co-sponsors would like to receive sign-ons as soon as possible and ideally by COB Wed, May 8th, they’re willing to accept co-sponsors up until the passage of the bill, targeted for this Fri, 5/10. Senators Markey ...

#MillionsMissing from ME: Your Stories

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Myalgic encephalomyelitis (ME) is a debilitating, chronic disease that steals so much from the person. We received heart felt stories from around the globe chronicling journeys with ME. This week we touched on parenting, aging, marginalization, and careers. Today we want to share more of your stories. While not all ...

Career and Loss for People with ME

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Myalgic encephalomyelitis (ME) is a debilitating, chronic disease that steals so much from people’s lives. People with ME may struggle with their identity through the loss or great change in their careers. Below are stories of individuals who found their careers greatly changed or taken.   We hope that you will join ...

Australia: Sign the Petition to Provide Disability Services to People with ME!

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Australians with ME/CFS are routinely rejected from the country’s National Disability Insurance Scheme (NDIS), because the Australian government doesn’t consider ME/CFS to be a permanent condition for most living with the illness. Sign this petition to support Aussies with ME/CFS and demand policy change! ...

#MEAction Drafts Response to NIH’s Request for Information

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NINDS, the National Institute for Neurological Disorder and Stroke at the NIH has solicited an RFI, or a Request for Information, from the ME community on how to advance research for myalgic encephalomyelitis.   With only a few weeks’ turn-around, the #MEAction NIH working group met and was able to produce ...