Long COVID Awareness Day
March 14, 2025
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#MEAction has been fighting alongside the Long COVID community since 2020 – we know that our futures are inextricably linked.
Category: Advocacy
Why I Joined a Stand Up for Science Rally
March 12, 2025
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Why I joined more than 1,000 protesters at a Stand Up for Science rally in Madison, WI to fight for the funding of critical science.
Press Release: Advocates Urge Administration to Reinstate Long COVID Advisory Committee
March 6, 2025
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Press Contact: #MEAction: [email protected] Patient & Expert Voices Must Be Heard: Advocates Urge Administration to Reinstate Long COVID Advisory Committee #MEAction and the Patient-Led Research Collaborative – leading organizations advocating for people with Long
Cochrane Collaboration Cancels Independent Analysis of Exercise Therapy Review for ME/CFS
January 24, 2025
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#MEAction is raising the alarm about Cochrane Collaboration’s sudden decision to abandon an independent analysis of the 2019 review of exercise therapy for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Cochrane has also altered the date of publication to 2024 to make the review appear current when, in fact, its sources are all 10 years old or
The Year Ahead
January 23, 2025
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As we embark on the new year, we are excited to share updates about #MEAction’s advocacy projects and community programs with you! While we focus on advancing support, research, and treatments for people with ME, we’re also closely monitoring changes to public health systems under the incoming administration, and will pivot as needed to fight
Why You Should Gift to #MEAction this Season
December 12, 2024
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As #MEAction prepares for the year ahead, I’m thrilled to share with you a few highlights from the incredible advocacy projects our staff has undertaken this past year. As you prepare for the holidays, I humbly ask that you consider making a gift to #MEAction today to keep our work going strong! Donate We Organized
Support Keeping Telehealth – Take Action Today!
December 11, 2024
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Expanded telehealth coverage for Medicare is set to expire at the end of this year, December 31st! Learn More #MEAction knows losing expanded telehealth will be a problem for many in our community and the wider disability community. While this action focuses on keeping the expanded Medicare coverage for telemedicine, we know that what Medicare
Urgent Action Needed: Demand NIH Fund the ME/CFS Research Roadmap!
October 10, 2024
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#TeachMETreatME: Share the Mayo Clinic CME With Your Doctor
August 30, 2024
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We encourage you to share the Mayo Clinic Proceedings Continuing Medical Education (CME) course on ME/CFS with your doctor! It is a wonderful opportunity for your clinician to get their continuing education credits, and learn about ME at the same time! Clinicians are often appreciative to receive these materials! We’ve created an email template for you to
#MEAction Awarded 3-Year Grant by Minnesota Department of Health Long COVID Program
July 30, 2024
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Breaking news! #MEAction has just been awarded a 3-year grant by the Long COVID Program of the Minnesota Department of Health (MDH) to address the impacts of Long COVID, ME/CFS, and related conditions, across the state and to serve disproportionately impacted communities. #MEAction’s work will focus on better connecting Minnesotans with ME/CFS, Long COVID, and