Category: Advocacy

#MEAction Georgia group gathering

#MEAction State Chapters Have been Busy

#MEAction State Chapters have been busy this year working to expand awareness, build support for House Bill H.R. 7057, and contribute to the Stop. Rest. and Pace. campaign, and provide much needed support to their communities during this unpredictable time. We are excited to share what they have been working on and remind those reading

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WHAT TO LOOK OUT FOR AT THE CDC’S SEP. 2020 ME/CFS MEETING

Mark your calendars! The CDC will hold its next ME/CFS Stakeholder Engagement and Communication (SEC) conference call on Wednesday, Sept. 23 at 3 pm Eastern Time. Find information on how to call into the meeting here. The CDC program staff only hold SEC meetings a couple of times a year so now is your chance to participate!  These

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MAYO CLINIC REMOVES GET AND CBT FROM CFS WEBPAGE

The Mayo Clinic recently removed harmful recommendations of Graded Exercise Therapy (GET) and Cognitive Behavioral Therapy (CBT) for myalgic encephalomyelitis (ME) from their website, a win for people with ME and their families. The site still contains problematic language and misleading information, but this recent change could help many individuals seeking care for their ME. For

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TRAINING OPPORTUNITY TO JOIN OUR UK AND SCOTLAND SOCIAL MEDIA TEAMS

Being able to communicate information effectively and efficiently is key to much of the work #MEAction does. We are looking for new volunteers to join us. If you’d like to help us reach and engage our target audiences, we’d welcome you in our social media teams. Don’t worry if you have no previous experience –

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OUR SUMMER IN REVIEW: ADVOCACY AND EDUCATION

What a Summer for Advocacy and Education!  We know the summer isn’t over yet, but A LOT has been happening with ME advocacy and education in the United States and the United Kingdom, and we want to make sure you are up to date, in the loop, and ready for next steps! National Institutes of Health (NIH)

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GOOD MORNING BRITAIN GETS IT WRONG ON POST-COVID TREATMENT AND ME

#MEAction UK has written a letter of complaint to Good Morning Britain in response to recent statements from Dr Hilary Jones on the programme, regarding the rehabilitation of long COVID patients. In his interview with Kate Garraway yesterday, Dr Jones recommended graded exercise as a strategy for those recovering from COVID-19. There is now a

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