We are gearing up for #MillionsMissing 2021! This year will be a week long event, from May 9 to 15, of action and activities to strengthen our community, and fight for recognition, research and medical education for myalgic encephalomyelitis (ME). Check out our website for the #MillionsMissing timeline of events, grab your t-shirt, and plan a local event! We
#MEAction has written an open letter to NIH institute director, Dr. Walter Koroshetz, and CDC division director Dr. Inger Damon to express our lack of confidence in their interagency approach to ME/CFS. Drs. Koroshetz and Damon co-lead the Interagency ME/CFS Working Group, which met last month, and oversee the ME/CFS program activities within their respective
We were thrilled at the outcome of the #MEAction press briefing last week where we invited a panel of experts to discuss the intersection between long COVID and myalgic encephalomyelitis (ME) to the media. The panelists made it crystal clear that a subset of long haulers are meeting the criteria for ME, and that it
Solve M.E. Advocacy week will be from Sunday, April 18th, 2021 to Saturday, April 24th, 2021. As a core member of the Long Covid Alliance and a partner on Advocacy Day, #MEAction would like to encourage you to participate in this important event if you are able. The keystone event is Advocacy Day, on Tuesday,
If you live in Scotland, please join our campaign to ask your MSPs to pledge their support for people with ME. Email your MSPs The Holyrood elections are coming up on 6 May 2021 and we want to make sure that MSPs are aware of ME and the desperate need for support. There are more
It’s a wrap! Last weekend concluded the final session #MEAction’s first ever ACTIVIST CAMP!, a teach-in series for activists in the United States. We are so proud of this program and what it has accomplished. Congrats to our new grads! #MEAction ACTIVIST CAMP! aimed to deepen our campers’ engagement with activism – teaching our collective
#MEAction UK has highlighted three specific areas of overlap that could benefit from a collaborative approach by the All Party Parliamentary Groups.
COVID-19 has significantly changed our lives in so many ways. With the recent increase in funding to study long COVID, there is understandably mixed-feelings in the ME community. While everyone wants those with long COVID to have the success people with ME so desperately deserve, for some, there is a fear of ME being lost
#MEAction has written to the Chief Medical Officer and the Joint Committee on Vaccination and Immunisation to call for ME to be included on the vaccination priority list.
Editor’s note: This update is provided by Thane’s care team. UPDATE: Friday, February 5 , 2021 Thane was released from the hospital today and is home! j UPDATE: Wednesday, February 3 , 2021 Thane’s lawyer shared with us that the evaluation went very well on Monday morning. Thane agreed to a “continuance for dismissal,” which means that
