#MEAction UK response to draft ME/CFS guideline from NICE
December 21, 2020
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#MEAction UK volunteers have worked to produce a robust and comprehensive response to the draft ME/CFS guideline from NICE.
Category: Advocacy
New graded exercise warning on current ME/CFS guideline
December 11, 2020
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#MEAction UK has just received a momentous email from the National Institute for Health and Care Excellence (NICE), advising us that they have updated the warning on the 2007 CFS/ME guideline, directing health professionals to the new draft recommendations on graded exercise therapy.
Advocacy Update from Finland
December 7, 2020
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1. “Good practise” guidelines for ME/CFSThe Finnish Medical Society Duodecim published in November a draft for new guidelines for ME/CFS for open consultation. The deadline was 4.12 and the final Hyvä käytäntö / Good practise guidelines will be published beginning of 2021. The timing was good as the historic NICE guidelines for ME/CFS (draft) were published in
#MEAction joins Solve M.E. & 18 other orgs to author letter to congress
December 4, 2020
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#MEAction is proud to join Solve ME/CFS Initiative (Solve M.E) and 18 other chronic disease stakeholders to sign a strong letter to Congress asking them to urgently prioritize long COVID and post-viral disease funding in future Congressional COVID-19 relief packages or appropriations agreements. The goal of the letter is have Congress fund millions of dollars
#MEAction sends letter to NIH ahead of ME/CFS meeting
November 4, 2020
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Last week the U.S. National Institutes of Health (NIH) announced it will hold its next ME/CFS Telebriefing on Thursday, Nov. 5 at 11am Eastern Time. #MEAction staff and volunteers worked quickly to draft a letter with detailed questions for NIH in advance of this meeting. You can read the full letter here. We will keep
#MEAction State Chapters Have been Busy
October 23, 2020
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#MEAction State Chapters have been busy this year working to expand awareness, build support for House Bill H.R. 7057, and contribute to the Stop. Rest. and Pace. campaign, and provide much needed support to their communities during this unpredictable time. We are excited to share what they have been working on and remind those reading
6 ways to have your say in the NICE ME/CFS guideline consultation
October 22, 2020
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You can steer #MEAction UK’s response to the draft ME/CFS guideline consultation. Join a community call, respond to our social media polls, volunteer to read the evidence reviews and more!
HERE’S WHAT HAPPENED AT THE CDC’S SEP. 2020 ME/CFS MEETING
September 25, 2020
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On Wednesday, September 23 the CDC held its ME/CFS Stakeholder Engagement and Communication (SEC) conference call and the #MEAction community showed up to make our voices heard! Here is our initial summary of what you need to know.
NATIONAL VOTER REGISTRATION DAY- SEPTEMBER 22, 2020
September 22, 2020
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Today is National Voter Registration Day! #MEAction along with many other organizations are sharing with their communities the importance of registering to vote for November’s general election.
WHAT TO LOOK OUT FOR AT THE CDC’S SEP. 2020 ME/CFS MEETING
September 22, 2020
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Mark your calendars! The CDC will hold its next ME/CFS Stakeholder Engagement and Communication (SEC) conference call on Wednesday, Sept. 23 at 3 pm Eastern Time. Find information on how to call into the meeting here. The CDC program staff only hold SEC meetings a couple of times a year so now is your chance to participate! These