Category: Advocacy

white rectangle with red splashes of tiny red dots in all four corners. #MEAction logo at the top. #MEAction Minnesota Helps Save Long Covid Program in red font.

Minnesota’s Long COVID Funding Saved from Elimination

We have good news! The first-in-the-nation Long COVID program run by the Minnesota Department of Health (MDH) has been saved from elimination! This means #MEAction will be able to continue its work helping Minnesotans with ME/CFS, Long COVID and related conditions access vital home and community-based support services, as part of our multi-year grant.   Last

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Research Roadmap Petition

We reached 7,000 signatures on our last letter. This time, our goal is 10,000. Please sign the letter today and share it with your friends and family.

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redish square image with the US Capitol photo with a red overlay on top of it. The words Congress is hearing from us. Then the MEAction logo in the center bottom.

#MEAction: Congress Is Hearing from Us

#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap, Medicaid, and telehealth.  We’ve been partnering with #NotJustFatigue on setting up congressional meetings in order to ask our elected officials for their support in making funding of the ME/CFS Research Roadmap a reality. #MEAction State Chapter

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blackish rectangle with the words, MEAction Georgia Volunteer - Maggie Boxey- at TEDxOjia with the meaction logo in the bottom right corner.

#MEAction Georgia Volunteer, Maggie Boxey, Speaks at TEDxOjai

#MEAction Georgia recently had a huge accomplishment. Maggie Boxey, who is a member of the Georgia State Chapter, a Navy veteran, and a published author, recently gave a Tedx talk about her experience as a person with ME. Maggie was diagnosed a year ago but has been sick since 2020. Before becoming sick Maggie and

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rectangle image with the words Join the fight for medicaid & telehealth in the top left corner with a airhorn in the bottom right corner. On the sides are stripes of blue and red. the meaction logo in the bottom left hand corner.

Join the Fight for Medicaid & Telehealth

We want to provide you with an update about where we stand with the federal administration massively cutting Medicaid and threatening to get rid of Telehealth extensions. We are so grateful for the actions that you have taken with us to fight to protect Medicaid and Telehealth but we still have a long road ahead

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burnt red rectangle image. with a red flashing siren in the top left corner. The words, Closing: Office of Long COVID! #MEAction logo in the bottom right hand corner.

Office of Long COVID at HHS Closing

Ian Simon, the head of the Long COVID Office at Department of Health and Human Services (HHS), released the following statement to coworkers: Dear Colleagues, We are writing to let you know that the Office of Long COVID Research and Practice will be closing as part of the administration’s reorganization coming this week. We are

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Red graphic with text: "Trump Admin Cuts Funding for ME/CFS Collaborative Research Center at Columbia University" and a #MEAction logo.

Trump Cuts Funding for ME/CFS Centers at Columbia University

We are writing to you with an urgent call to action. The Trump administration has cut funding for the Center for Solutions for ME/CFS at Columbia University as part of a broader $400 million funding termination at the university. This devastating decision includes the loss of NIH funding for one of the nation’s few Collaborative Research

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