In just six months, #MEAction has taken on some of the biggest issues facing people with ME and Long COVID. A small, dedicated staff, an extraordinary group of volunteers, and generous donors like you have gotten us here. I want to take a moment to tell you what we have accomplished together, because celebrating our collective work is important. We Showed Up Around the World This year, the #MillionsMissing campaign was amplified globally. From Brazil to France, the UK to Mex

Funded by the Whittemore Peterson Institute (WPI) and Mayo Clinic, the project will develop the first nationally applicable clinical guidelines for emergency department care of ME/CFS and Long COVID patients

Juneteenth is a moment to celebrate freedom and reckon honestly with who that freedom has and has not reached. For the ME and Long COVID community, that reckoning is personal.

People with ME and Long Covid should be exempt from work requirements, period. Join our fight.

Submit your work and join us for this year's Severe ME Artists Project!

Communities living with energy-limiting, “invisible” chronic diseases are deeply concerned by the Centers for Medicare & Medicaid Services (CMS) interim final rule released last week that will make it even more difficult to receive exemptions from Medicaid work requirements than previously laid out in HR1 last fall. The interim rule will make the process of receiving work requirement exemptions more difficult for people with ME/CFS, Long COVID, and other infection-associated

Medicaid work requirements exemptions are being restricted

“You have a friend inside,” she told ME and LC advocates at the May 12th D.C. action.

A $44,000 grant is waiting. Help us unlock it.

Nearly 4,000 of you signed our letter to Secretary Kennedy calling on HHS to protect Medicaid access for people with ME and Long COVID.

We built key relationships to protect Medicaid for ME and Long COVID. Now we need your help to keep going.

On May 12th, the ME/CFS and Long COVID community are gathering outside the Department of Health and Human Services to call on HHS policymakers to intervene before tens of thousands of people with the debilitating diseases of ME/CFS and Long COVID lose access to the healthcare they need to survive.

ME awareness month is here. Here's how to show up (at whatever battery level you have).

Give today and your donation will be matched up to $15K!

Join our fight to protect Medicaid for our community!

Fury and hope can coexist. Here’s why we believe this is the year everything changes for people with ME.

We have a new research paper out, and it marks an important milestone in a collaboration that set out to improve care for people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The paper is co-first-authored by Jaime Seltzer, Scientific Director at #MEAction, and Dr. Stephanie Grach, an Assistant Professor of Medicine at Mayo Clinic Rochester, and a clinician-researcher specializing in ME/CFS care.Through a small grant from the Society to Improve Diagnosis i

#MEAction and NIH Director to Discuss Funding for ME/CFS Research Roadmap

Our year-long campaign to protect Medicaid for people with myalgic encephalomyelitis (ME) and Long COVID continues! We are pleased to share that our Advocacy Director, Ben HsuBorger, will be joining a national webinar to discuss how the H.R.1 funding bill passed by Congress last year (commonly known as the One Big Beautiful Bill) will affect disability communities. The Grassroots Project, which supports disability grassroots advocacy, networking, and leadership development,

#MEAction is fighting to protect your Medicaid access. We’re taking action in 42 states and at the federal level to ensure ME/CFS and Long COVID are recognized and protected.