×

Category Archives: #MillionsMissing

Volunteer of the Month: a Scottish Trio

/ by / 3 Comments
This month we want to honor the work of three women with #MEAction Scotland - Emma Shorter, Kim Gurav and Janet Sylvester -  who have done an incredible job advocating for people with myalgic encephalomyelitis. The partnership began last January when Kim and Janet wanted to organise a screening of Unrest, which ...

Thousands sign letter to be delivered to Francis Collins

/ by / 3 Comments
On May 24th, 2018, we delivered this 580-page letter to Francis Collins, with over 7,000 signatures, photos, and personal comments. We are demanding urgent action to increase funding for research, find a diagnostic test, support clinical trials, and develop treatments, and a meeting to discuss all this with NIH Director Francis Collins. We also ...

The Global Impact of #MillionsMissing

/ by / 0 Comment
The impact of #MillionsMissing 2018 was phenomenal. Protestors took to the streets in 100 countries across the world with demonstrations taking place in North America, South America, Europe, the United Kingdom, South Africa and Asia. Along with people taking action from home, there was a total of 300 visibility actions. More ...

Sign MEAction’s Letter to Francis Collins

/ by
Signatures for this letter are now closed. We are planning to deliver it soon and will keep the community posted on any and all updates. On May 12th, the #MillionsMissing will protest in over 100 cities worldwide, demanding real investment in research funding and clinical education for myalgic encephalomyelitis (ME) from ...

Australian Parliament Recognises Urgent Need for Biomedical Research for ME

/ by / 3 Comments
The Myalgic Encephalomyelitis (ME) and chronic fatigue syndrome (CFS) patient and research communities are delighted the Australian parliament officially recognise the urgent need for biomedical research in the field, passing a motion in the Senate to mark International ME and CFS Awareness Day ...

How to Protest Virtually with the #MillionsMissing on May 12th

/ by / 3 Comments
Join the protest from your home. Here are several ways to take action ...

OMF shares a Patient’s Reflection on UNREST

/ by / 1 Comment
This anonymous patient was truly moved by viewing Unrest and is sharing this personal reflection to encourage action ...

Why we’re Targeting the NIH for #MillionsMissing

/ by / 2 Comments
    The logic is crystal clear for why the National Institutes of Health (NIH) should make a serious commitment to funding research for ME/CFS. The disease affects a high proportion of Americans - estimates range from 1 to 2.5 million people; the disease is highly debilitating, leaving 75 percent unable to ...

A song for ME: Blowin’ in the Wind

/ by / 1 Comment
    The following arrangement of Blowin’ in the Wind, with alternative lyrics about the struggles faced by people with ME, is performed by patients and their carers from around the world: If you would like to play and/or sing this song at a #MillionsMissing protest on 12 May, or at any other event, ...