NIH Must Not Overlook Evidence of Exercise Harm
March 22, 2023
4 Comments
Long COVID Exercise study must address safety, efficacy concerns.
Category: Research
MEAction questions Long COVID exercise study’s safety, efficacy
March 6, 2023
2 Comments
Calls for immediate public release of RECOVER’s clinical trial design
Infection-associated chronic disease experts needed at ARPA-H
November 22, 2022
1 Comment
Congress launched ARPA-H (the Advanced Research Projects Agency for Health) this past March to focus on high-risk, high-reward research projects with the goal to solve intractable health problems. As ARPA-H is in the process of hiring its first cohort of program managers, #MEAction and a coalition of chronic disease advocacy groups have published an open
Long COVID’s U.S. Economic Impact Est. $140-$600 Billion Annually
October 7, 2022
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Post-viral conditions like ME/CFS provide guidance for estimating the economic impact of Long COVID.
Protecting the Most Vulnerable: Complexities of Vaccines and Chronic Illness
September 1, 2022
9 Comments
It has been over a year since the COVID-19 vaccine became available, and a subset of people with myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) are reporting adverse effects from getting vaccines and boosters from all manufacturers. There are also rare reports of people without pre-existing conditions developing Long COVID and ME/CFS symptoms after getting
New T-Cell Research at the University of Massachusetts
May 18, 2022
1 Comment
#MEAction’s Director of Scientific and Medical Outreach, Jaime Seltzer, sat down with Dr. Liisa Selin, MD, PhD, and Dr. Anna Gil, PhD, recipients of an R01 grant to research immune system dysregulation in people with ME/CFS. Selin, a professor of pathology and a person with ME herself, and Gil, a viral immunologist, comprise the two-person
Exciting news about Mayo Clinic!
May 17, 2022
3 Comments
We’ve got some very exciting news this week! Clinicians working at the Long COVID clinic at Mayo Clinic’s campus in Rochester, Minnesota met with #MEAction to discuss treatment, research and improved community engagement for people with ME! They reached out to us because they were interested in engaging with a national patient-led organization with strong
ME/CFS on TV (Part 3)
April 8, 2022
1 Comment
RETURN TO PART 1 OF THIS SERIES HERE ME/CFS ON THE ITALIAN TV SCREEN: A VIRTUOUS MODEL by Giada Da Ros Through sundry television spaces (news, fiction, talk shows), the ME/CFS community challenged existing political, medical, and philosophical approaches to the illness (and to maladies in general). The community sought to re-appropriate the discourse, fight
ME/CFS On TV (Part 2)
March 3, 2022
6 Comments
RETURN TO PART 1 OF THIS SERIES HERE “THAT’S WHY THEY DON’T BELIEVE YOU, YOU DON’T LOOK SICK!”: FICTIONAL REPRESENTATIONS OF ME/CFS by Giada Da Ros Sociologists emphasize the importance of social and cultural representation of social and cultural representation of chronic and emerging disease, both for individual and collective behavior. “(T)he fact that people
Be part of designing UWS research into ME and long COVID
February 3, 2022
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UPDATE: The research team have let us know that they’ve received a huge response to this request and they now have the information they need. They’ll be in touch with people individually if they are eligible to participate in the study. If you got involved, thanks for your support! Researchers at the University of the