On May 24th, the National Institutes of Health (NIH) released the document Request for Information: Soliciting Input for New Research Strategies for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). An RFI, or Request for Information is “critical for identification and consideration of research areas and topics to be included in future efforts.” The Trans-NIH ME/CFS Working Group will review the comments about ME/CFS research that they receive from the public and potentially use this information to direct current and future research.
#MEAction is currently formulating our response as an organization, along with a mechanism for soliciting and incorporating community input.
The Trans-NIH ME/CFS Working Group is soliciting the following information from “researchers, health care providers, patient advocates, and health advocacy organizations, scientific or professional organizations, Federal agencies, and other interested parties”:
- Emerging needs and opportunities in ME/CFS Research, including
- A description of the need or opportunity
- A scientific rationale and potential health impact
- Any anticipated challenges that may arise
- Appropriate benchmarks for evaluating progress
- Challenges or barriers to ME/CFS research
- Gaps and opportunities in research
The NIBIB is particularly interested in new imaging and bioengineering technologies that may have bearing on ME/CFS research.
- Must be submitted through Friday, June 24, 2016
- May be submitted by individuals as well as organizations; organizations are encouraged to submit a consensus document as well
- May be submitted anonymously; however, submissions should not include any information the author considers private
- Must be submitted to [email protected]