#MEAction & Mayo ME/CFS Algorithm is Live!
April 26, 2023
23 Comments
Together, we built a new ME/CFS diagnostic & treatment algorithm for Mayo Clinic– including info on severe ME.
Category: Medicine
ME & Long COVID patients need telemedicine prescribing flexibility
March 31, 2023
3 Comments
DEA should amend its proposed rule to ensure access to care
New Diagnostic Codes for ME/CFS in the US ICD-10-CM
October 6, 2022
1 Comment
Code change will ensure US can track diagnosed cases of ME/CFS in newly created electronic health records
#MEAction & Mayo win Grant for Diagnostic Improvement
September 22, 2022
2 Comments
Amazing news! #MEAction and Mayo Clinic applied for a grant together from the Society to Improve Diagnosis in Medicine to transform the diagnostic and treatment process at Mayo Clinic Rochester for people with ME/CFS!
Protecting the Most Vulnerable: Complexities of Vaccines and Chronic Illness
September 1, 2022
9 Comments
It has been over a year since the COVID-19 vaccine became available, and a subset of people with myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) are reporting adverse effects from getting vaccines and boosters from all manufacturers. There are also rare reports of people without pre-existing conditions developing Long COVID and ME/CFS symptoms after getting
Be part of designing UWS research into ME and long COVID
February 3, 2022
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UPDATE: The research team have let us know that they’ve received a huge response to this request and they now have the information they need. They’ll be in touch with people individually if they are eligible to participate in the study. If you got involved, thanks for your support! Researchers at the University of the
Mourning the loss of Dr. Ron Tompkins
January 18, 2022
2 Comments
Today #MEAction joins the community in mourning the loss of Dr. Ronald G. Tompkins, MD, ScD, who passed away this week. Ron Tompkins was a clinician, clinical researcher, and friend and ally to people with ME. He was the Sumner M. Redstone Professor of Surgery at Harvard Medical School, Founding Director of the Center for
Chat to NICE ME/CFS guideline committee members
November 17, 2021
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On Tuesday 30th November at 5pm, we’re holding a community Q&A, and will be joined by two of the NICE committee members, who have spent almost 3 years working on the new ME/CFS guideline.
UK Parliamentary Group to discuss new ME/CFS guideline
November 12, 2021
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The next meeting of the All-Party Parliamentary Group on Myalgic Encephalomyelitis (APPG on ME) will take place from 2 – 3 pm on 24 November 2021. Email your MP asking them to attend, and help to ensure the new ME/CFS guideline is implemented. Find their contact details at: https://members.parliament.uk/FindYourMP This meeting will focus on the
Tell your Doctor that GET is gone
November 9, 2021
1 Comment
The updated NICE guideline on ME/CFS contains substantial changes that alter the treatment and management of people with ME in England and Wales*. We need your help to tell doctors and other medical staff that the recommended treatments for people with ME have changed. We want to get the message out that there are new