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Category Tag: research

Apply to Attend the NIH Conference with a Scholarship from #MEAction!

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#MEAction is currently accepting applications from medical students and practicing medical professionals to attend the National Institutes of Health meeting on myalgic encephalomyelitis (ME) research on April 4th-5th, 2019 in Bethesda, MD. The application is due at 5 p.m. EST on February 22nd. The goal of the meeting is to showcase high-quality studies to better understand the state of ...

How Does ME Research Fare? Check Out these Piecharts.

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Research scientist, Dr Mark Guthridge, PhD, from Melbourne Australia created this piechart to show that of these 13 diseases, people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) have the worst quality of life but the least number of scientific publications in 2018. Follow Dr. Guthridge on Twitter.                                   In this piechart, Dr. Guthridge shows that ME/CFS ...

Apply for Stanford Medicine X Conference as ePatient or Presenter – deadline Jan. 31st

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Stanford University hosts an annual academic conference, Medicine X, every September to bring together community stakeholders, innovators and leaders in health care to empower collaborative change. This year's Medicine X | Change conference will be held at Stanford University in Palo Alto, California on Sept. 20 - 22, 2019. Stanford describes ...

Study Shows that Red Blood Cells are Stiffer in People with ME

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Listen to the article:      Researchers have published a paper that shows various measures of deformability in the red blood cells of people with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) indicating that they are significantly stiffer in people with ME/CFS than those from healthy controls. The observations suggest that red blood cell transport through ...

2018 ME/CFS Research Summary

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Commissioned and originally published by the Solve ME/CFS Initiative. Be sure to check out their interactive guide here. Follow Rochelle on Medium. 2018 was a pivotal year for ME/CFS research, yielding over 200 publications specifically addressing various aspects of ME/CFS. Foundational work emerged from prominent biomedical scientists around the globe, leveraging ...

#MEAction Responds to NIH

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As many of you know, #MEAction activists for myalgic encephalomyelitis (ME) met with the director of the National Institutes of Health (NIH), Dr. Francis Collins, on December 7 to discuss accelerating research in order to more rapidly provide diagnostics and treatments to people with ME. To read about the details of ...

Journal Publishes Article about ME Biobank

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Frontiers in Neurology, an open-access journal, published an article about the UK ME/CFS Biobank this week. This narrative paper describes the journey of how people with Myalgic Encephalomyelitis /Chronic Fatigue Syndrome (ME/CFS) came together with a multidisciplinary team of researchers to conceptualize and establish the biobank, which provides a critical resource ...

Study Shows Red Blood Cells Less Deformable in ME Patients – Possible Biomarker

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Written by Ronald W. Davis, PhD This paper documents that red blood cells are less deformable in ME/CFS patients compared to healthy controls. It potentially could be a biomarker, and we are proceeding to design new devices that will make a clear distinction between patients and healthy controls. These devices will ...

Study Examines Link between Immune Dysfunction and Metabolism in ME

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This article was first published on ME Australia.  An international collaboration of scientists, including Fane Mensah, Jo Cambridge and Australia's Chris Armstrong, investigated the relationship between CD24 expression and B cell maturation and found CD24 expression on B cells is related to energy metabolism and that its role differs between B ...

Research: supporting advocacy orgs yields huge payoffs

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This Giving Tuesday, I've got some good science to show why you should donate to #MEAction and other advocacy organizations! The study Disease Politics and Medical Research Funding: Three Ways Advocacy Shapes Policy sets out to discuss single-disease interest groups and their influence on US politics: "This article explores their effects on federal ...