Category: All News

Connecting Black People with ME and/or long Covid in the UK

Darren Randon, a poet, qualified teacher, community builder, facilitator, host and co-founder of Well Versed Ink from Thornton Heath, is launching a new group aimed at supporting Black and Black-mixed people with ME and/or long Covid in the UK. The group plans to create a safe space to share experiences and create community with the

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Severe ME Artists Project

#MEAction is excited to announce our Severe ME Artists Project which will feature work from those within the severe ME community in honor of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase their artwork (whether it be writing, photography, drawing, singing, or any other medium that illustrates their talents) with multiple ways to participate based on a person’s energy levels.

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TWO WEEKS TO SEND IN YOUR RESEARCH IDEAS

Help prioritise ME/CFS research by filling in this survey A major UK project is looking for your input. They want to know what research you think should be funded in the future, and the deadline for adding your ideas is fast approaching. Your responses must be in by Monday 5th July 2021. Find out more

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#MEAction Hosts an Artist’s Salon During #MillionsMissing

#MEAction Hosts an Artist’s Salon During #MillionsMissing

Activism comes in many forms, and #MEAction recognizes the significant role that art can play, not only as healing and cathartic expression, but as a powerful tool to move hearts and drive change. The ME community is host to talented artists all over the world, and we wanted to celebrate their gifts by hosting a

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CDC releases post-COVID guidance: 4 takeaways for ME/CFS

The U.S. Centers for Disease Control and Prevention (CDC) has published interim guidance for evaluating and caring for patients with post-COVID conditions.* The CDC will present this guidance to clinicians on a public COCA Call on Thursday, June 17th from 2:00 PM – 3:00 PM ET. This guidance deserves a detailed review of what has

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Cochrane redux

Get caught up!  Start with Cochrane Analysis: What’s Here, What’s Missing, Conclusions What has gone on before Cochrane Reviews are well-known systematic reviews of studies in healthcare, and are internationally recognized — enough to be considered the last word in healthcare as far as some medical publications are concerned.  In 2019, Larun et al. wrote

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Celebrating #MEAction's State Chapter Successes

Celebrating #MEAction’s State Chapter’s wins

#MEAction State Chapters have been busy both locally and federally to continue the fight for ME & Long COVID recognition and awareness. While the road is long and often times filled with delays and detours, #MEAction State Chapters continue to drive forward and make inroads. #MEAction is beyond grateful and very thankful for the work

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