Washington, DC – The ME/CFS and Long COVID communities will demonstrate today with the installation of 300 cots on the National Mall to represent the millions of people missing from their lives due to post-infectious disease. We are the #MillionsMissing.
Calls for immediate public release of RECOVER’s clinical trial design
Together, we built a new ME/CFS diagnostic & treatment algorithm for Mayo Clinic– including info on severe ME.
DEA should amend its proposed rule to ensure access to care
Long COVID Exercise study must address safety, efficacy concerns.
Calls for immediate public release of RECOVER’s clinical trial design
UPDATE: We want to provide a brief update on Sami Berry’s case and what she needs help with now. The situation in hospital reached the point that Sami decided she had to self-discharge to try and stay alive. She is at home with a Percutaneous Endoscopic Jejunostomy (PEJ ) tube but she needs treatment with
As we ring in the new year, it is a wonderful time to reflect on how much #MEAction accomplished in a very busy and exciting 2022! There are so many wins to share, so we decided to narrow down the list to our TOP HITS! ——————- #MILLIONSMISSING 2022: * Bringing together the powerful Virtual #MillionsMissing
Reflections on embodying intersecting identities of disease and disability
Reflections from the World AIDS Day White House Protest
