Covid-19 Resources for People with ME

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Category Archives: All News

National Disability Voter Registration Week

National Disability Voter Registration WeekJuly 13-17, 2020 #MEAction is excited to participate in National Disability Voter Registration Week! Let’s get people with ME and all people with disabilities registered to vote, educated about this year’s election, and prepared to cast our ballots!We have gathered resources to help make it as ...
Reflection of woman with COVID-19 virus imposed on top

Graded exercise therapy not recommended for post-COVID fatigue, say NICE

The National Institute for Health and Care Excellence (NICE) have released a document entitled “interim findings”, stating that the recommendation of graded exercise therapy for mild and moderate ME/CFS should not apply to people with fatigue following COVID-19. They note that the existing guideline was published in 2007, many years ...

Dr. Anthony Fauci says that post-covid syndrome “is highly suggestive of” myalgic encephalomyelitis

During an International AIDS Society Covid-19 press conference held July 9th, Dr. Anthony Fauci (Director of the National Institute of Allergy and Infectious Diseases and member of the White House Coronavirus Task Force) answered a question posed by Terri L. Wilder, who is the #MEAction New York leader, journalist for ...

ADA 30th Anniversary–Stories Wanted

The 30th of the anniversary of the American Disability Act (ADA) is fast approaching--July 26th. As a way to celebrate this momentous occasion, we are looking to share stories of how the ADA has positively impacted the lives of people with ME.We want to honor those who fought hard to ...

Post-COVID research & clinical care must include ME/CFS

People with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have been concerned since the start of the coronavirus pandemic that a subset of COVID-19 patients will go on to develop ME/CFS. Unfortunately, we are already hearing from many COVID-19 survivors around the world that they are continuing to experience debilitating symptoms for ...
DNA strands surround stamp that says Funded

£3.2million granted for largest ME/CFS DNA study ever

Funding for the world’s largest genetic study into myalgic encephalomyelitis (ME), led by a partnership of patients and scientists, has been announced. Thanks to £3.2 million funding, awarded jointly by the Medical Research Council and National Institute for Health Research, work can begin on DecodeME, the ME/CFS DNA study that ...

#MEAction Supports Health Care at Home Act

#MEAction is excited to announce our support of the Health Care at Home Act, which increases telemedicine opportunities during the pandemic. Telemedicine enables people with myalgic encephalomyelitis (ME) to access their healthcare professionals without leaving home, which can mean the difference between being able to access a doctor or not ...
Take ME Seriously #MEAction UK

NICE continue to promote defunct treatment for post-viral illness

At the end of April, #MEAction UK sent the National Institute of Health and Care Excellence (NICE) a six-metre-long card containing thousands of your names and messages describing the harm caused by graded exercise therapy (GET). NICE continues to recommend graded exercise therapy in their existing ME/CFS guidelines, whilst these ...
Scientists call for more European research on ME/CFS

Scientists Call for More European Research on ME

Editor’s Note: The below press release is from fellow ME advocates at the European ME Coalition (EMEC). The original EMEC press release can be found here. Check out #MEAction news archives for more about the origins of this campaign. Read about person with ME and advocate Evelien Van Den Brink’s ...
Person looking at news on smart phone.

#MEAction Puts ME into the Spotlight

Since the coronavirus pandemic hit, #MEAction has pitched news stories and worked with major news outlets to sound the alarm that COVID-19 patients are at risk of developing myalgic encephalomyelitis (ME) and other chronic illnesses. In the past month, #MEAction has worked to tell this story in The Washington Post, ...