Category: All News

Goodbye to graded exercise therapy but concerns about physical activity programmes – Community Discussion

There were significant concerns about the recommendation of a physical activity programme in the draft ME/CFS guideline, even with the caveats attached. The recommendation that a physical activity programme should be considered if patients would ‘like’ to start one, was felt to imply that there is a choice or a desire involved, rather than increased physical activity being impossible for many.

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Important News from Jennifer Brea

Today we announce that #MEAction’s co-founder and executive director, Jennifer Brea, is going to be transitioning to a board position so she can take time to focus on her health after five intense years of ME and advocacy. This will not happen immediately- we will be working hard to find a new Executive Director first!

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5 different art images that won for 2020 PostcardsToDoctors are shown in a collage next to the #MEAction logo and wording Join our 2020 campaign!

Announcing the Launch of Postcards to Doctors 2020!

We’re thrilled to announce the winners of our postcard design contest for our second annual Postcards to Doctors campaign! We received over 100 submissions from 40 people by the October 5th deadline. We were so impressed by the beauty, cleverness, and skill on display in these wonderful pieces.   It was no small feat to choose just

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National Institutes of Health (NIH) logo on side of building

#MEAction sends letter to NIH ahead of ME/CFS meeting

Last week the U.S. National Institutes of Health (NIH) announced it will hold its next ME/CFS Telebriefing on Thursday, Nov. 5 at 11am Eastern Time.  #MEAction staff and volunteers worked quickly to draft a letter with detailed questions for NIH in advance of this meeting. You can read the full letter here. We will keep

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Meet the Long Haulers Developing ME/CFS

#MEAction sent out a press release last week to 300 major publications in the US introducing them to the long haulers who are experiencing symptoms of myalgic encephalomyelitis (ME), specifically post-exertional malaise. We alerted the press to the terrifying possibility that 1 million more Americans could develop ME following COVID-19 at the current rate of

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Meet the Volunteers: Karima and Pam

It was brilliant to find people who not only understood life with ME but were fighting to make it better. I soon realised there was a lot of work happening all year round, far beyond #MillionsMissing, and I’ve been helping where I can ever since.

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