We were thrilled at the outcome of the #MEAction press briefing last week where we invited a panel of experts to discuss the intersection between long COVID and myalgic encephalomyelitis (ME) to the media. The panelists made it crystal clear that a subset of long haulers are meeting the criteria for ME, and that it
Category: Press releases
When: Thursday, March 25, 12 p.m. PT / 3 p.m. ET Contact: Adriane Tillman, #MEAction, [email protected] MEDIA Advisory: A Panel of Experts to Explain How Long COVID Intersects with ME/CFS On March 25, #MEAction will host a telepresser featuring a panel of experts who are uniquely positioned to speak to how long COVID is
Harmful graded exercise therapy for people with ME has been dropped in a new draft ME/CFS guideline from the National Institute for Health and Care Excellence (NICE).
#MEAction UK is highlighting the links between “Long Covid” and ME in the press. In particular, we want people at risk to know about the danger of exercise if they have post-exertional malaise.
#MEAction sent out a press release last week to 300 major publications in the US introducing them to the long haulers who are experiencing symptoms of myalgic encephalomyelitis (ME), specifically post-exertional malaise. We alerted the press to the terrifying possibility that 1 million more Americans could develop ME following COVID-19 at the current rate of
Researchers Say COVID-19 Will Lead to Surge in Chronic Illness, ME Sufferers Speak Out. FOR IMMEDIATE RELEASE:Contact: Adriane Tillman [email protected] Some post-COVID patients are not recovering as expected, and researchers are predicting the pandemic will lead to a surge in long-term chronic illness, including an uptick in cases of myalgic encephalomyelitis (ME – also known as
FOR IMMEDIATE RELEASE Contact InfoLaurie [email protected] A new viral video claiming to be an excerpt from a forthcoming documentary, Plandemic, is the latest in a growing number of Covid-19 disinformation efforts. In it and other videos, discredited virus researcher, Dr. Judy Mikovits, claims among other things that Covid-19 is a manmade virus that cannot be
ME/CFS Protesters Interrupt House Appropriations Hearing FOR IMMEDIATE RELEASE:Contact: Adriane Tillman [email protected] Today, #MEAction protesters wearing red #millionsmissing t-shirts interrupted NIH Director Dr. Francis Collins’s opening statement to the House Appropriations LHHS Subcommittee hearing to demand the NIH take urgent, comprehensive action to stem the crisis of ME/CFS that has been growing unchecked for more than three decades.
UK PARLIAMENT WILL DEBATE ME IN HISTORIC HOUSE OF COMMONS DEBATE FOR IMMEDIATE RELEASE Parliament has announced that it will debate the treatment and funding of patients with myalgic encephalomyelitis (ME), a debilitating and serious, multi-systemic disease. The ME debate will take place in the Main Chamber on Thursday afternoon, 24th January. This debate follows
ACTIVISTS PROTEST SPEAKER AT COLUMBIA UNIVERSITY CONFERENCE Human Rights Abuser Per Fink is Not Welcome in New York Follow the story at: @meactnet and #ScienceNotStigma FOR IMMEDIATE RELEASE October 18, 2018- New York, NY Activists with NY #MEAction will converge on Columbia University Saturday, October 20that 8:00 a.m. to protest Danish Physician Per Fink’s appearance at the 4thColumbia