Category: Press releases

#MEAction Sends Press Release About #MillionsMissing

#MEAction sent out a press release last week to alert media to the #MillionsMore developing ME following COVID-19.  We invited 651 journalists in the U.S and 552 journalists in the U.K. to join our #MillionsMissing event this Wednesday, May 12th.  Before COVID-19 long haulers there were the #MillionsMissing… Read the US Press Release Read the

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Screenshot showing 4 of the panelists on a Zoom screen with a red paly button in the middle and the MEACtion logo in the corner

Telebriefing was a success!

We were thrilled at the outcome of the #MEAction press briefing last week where we invited a panel of experts to discuss the intersection between long COVID and myalgic encephalomyelitis (ME) to the media. The panelists made it crystal clear that a subset of long haulers are meeting the criteria for ME, and that it

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Headshots of panel with wording to the side about date and time.

Press Telebriefing: long COVID & ME

When: Thursday, March 25, 12 p.m. PT / 3 p.m. ET  Contact: Adriane Tillman, #MEAction, [email protected]  MEDIA Advisory: A Panel of Experts to Explain How Long COVID Intersects with ME/CFS    On March 25, #MEAction will host a telepresser featuring a panel of experts who are uniquely positioned to speak to how long COVID is

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Meet the Long Haulers Developing ME/CFS

#MEAction sent out a press release last week to 300 major publications in the US introducing them to the long haulers who are experiencing symptoms of myalgic encephalomyelitis (ME), specifically post-exertional malaise. We alerted the press to the terrifying possibility that 1 million more Americans could develop ME following COVID-19 at the current rate of

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Researchers Say COVID-19 Will Lead to Surge in Chronic Illness, ME Sufferers Speak Out.

Researchers Say COVID-19 Will Lead to Surge in Chronic Illness, ME Sufferers Speak Out. FOR IMMEDIATE RELEASE:Contact: Adriane Tillman [email protected] Some post-COVID patients are not recovering as expected, and researchers are predicting the pandemic will lead to a surge in long-term chronic illness, including an uptick in cases of myalgic encephalomyelitis (ME  – also known as

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ME/CFS Protesters Interrupt House Appropriations Hearing

ME/CFS Protesters Interrupt House Appropriations Hearing FOR IMMEDIATE RELEASE:Contact: Adriane Tillman [email protected] Today, #MEAction protesters wearing red #millionsmissing t-shirts interrupted NIH Director Dr. Francis Collins’s opening statement to the House Appropriations LHHS Subcommittee hearing to demand the NIH take urgent, comprehensive action to stem the crisis of ME/CFS that has been growing unchecked for more than three decades. 

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UK Parliament will debate ME in historic House of Commons debate

UK PARLIAMENT WILL DEBATE ME IN HISTORIC HOUSE OF COMMONS DEBATE FOR IMMEDIATE RELEASE Parliament has announced that it will debate the treatment and funding of patients with myalgic encephalomyelitis (ME), a debilitating and serious, multi-systemic disease. The ME debate will take place in the Main Chamber on Thursday afternoon, 24th January. This debate follows

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