Research Roadmap Petition
May 7, 2025
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We reached 7,000 signatures on our last letter. This time, our goal is 10,000. Please sign the letter today and share it with your friends and family.
Category: COVID-19
SOS: #MEAction Responds to Urgent Crisis – MN Long COVID Funding At Risk
May 7, 2025
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At 5:00 pm Eastern time yesterday, we found out that the Minnesota house would be voting on a bill that would remove funding to all Long COVID grants, including #MEAction’s grant, which allows us to provide direct support to people with ME and Long COVID. This is yet another SOS moment for people in our
#MillionsMissing 2025: Sending Out An SOS
April 2, 2025
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For #MillionsMissing 2024, #MEAction is sending out an SOS.
White House Halts Funding for Long COVID Grants
March 27, 2025
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The White House is terminating funding for NIH RECOVER grants awarded in 2022 and 2023 for Long COVID.
Office of Long COVID at HHS Closing
March 25, 2025
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Ian Simon, the head of the Long COVID Office at Department of Health and Human Services (HHS), released the following statement to coworkers: Dear Colleagues, We are writing to let you know that the Office of Long COVID Research and Practice will be closing as part of the administration’s reorganization coming this week. We are
Long COVID Awareness Day
March 14, 2025
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#MEAction has been fighting alongside the Long COVID community since 2020 – we know that our futures are inextricably linked.
The RECOVER-Treating Long COVID (RECOVER TLC) The Path Forward
September 26, 2024
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The RECOVER-Treating Long COVID (RECOVER TLC) Kick-off Meeting was Sept 23-25 in person and over Zoom. I had the privilege of attending over Zoom and Jaime Seltzer, #MEAction’s Scientific Director, represented the needs of the ME community in person and as an invited member of a panel on clinical trial design. There were many speakers
#TeachMETreatME: Celebrating An Impactful Campaign
May 17, 2024
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We are THRILLED to share the rolling successes of our #TeachMETreatME campaign with you, as we report back on the amazing medical education events that have taken place so far – with many more to come in the upcoming months! (And don’t miss the global #MillionsMissing events later in the article!) Over the past several
Home Test To Treat: Access Free Home Telehealth for Flu & COVID-19 Infections
March 7, 2024
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#MEAction and Body Politic* are excited to collaborate with Home Test To Treat to share their critically important resource! Acute COVID-19 treatment and testing is unfortunately becoming harder and harder to access with the U.S. government public health emergency having been declared ended. The Home Test To Treat pilot program is a way to fill
#MEAction Meets with the Office of Long COVID Research and Practice
January 25, 2024
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On January 17th, 2024, #MEAction convened a constructive meeting with Dr. Ian Simon, the newly appointed director of the Office of Long COVID Research and Practice within the U.S. Department of Health and Human Services (HHS). The Office of Long COVID Research and Practice staff demonstrated a willingness to understand the connection between ME and