Facets of ME: Centering ME During the Holidays
December 8, 2022
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Welcome to the final #FacetsOfME for 2022, where we focus on centering ME during the holidays!
Category: Severe ME
Facets of ME: Travel Tips
August 26, 2022
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Welcome to August’s Facets of ME! If you are unfamiliar, #FacetsOfME is a new #MEAction feature this year where we take time to explore one facet or aspect of myalgic encephalomyelitis (ME/CFS). Sometimes it is a symptom and sometimes it is a unique aspect many of us face living with ME. So far we have
Severe ME Artist Project 2022 — Gallery
August 2, 2022
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A collection of works by artists with severe ME.
Severe ME Artists Project 2022!
June 29, 2022
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#MEAction is once again excited to announce our Severe ME Artists Project 2022 that will feature work from those within the severe ME community and will be in recognition of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase their art work (whether it be
Facets of ME: Temperature Dysregulation
June 23, 2022
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Welcome to June’s #FacetsOfME! Facets of ME is an educational feature where we dive into a particular aspect (or facet) of ME and explore it more in depth. This month we are focusing on temperature dysregulation- heat and cold intolerance. It is surprising how difficult this symptom can be to manage until you experience it.
Elevating stories of the #MillionsMissing to HHS leadership
April 20, 2022
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#MEAction is advancing ME/CFS advocacy efforts through our ongoing engagement with U.S. federal agencies, including at the Department of Health and Human Services (HHS). We continue to fight for our government to do more to meet the needs of people with ME, and to ensure that the evolving Long COVID federal response includes ME/CFS. Read
#MEAction Presents: Not Going Quietly Screening & Panel
April 20, 2022
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We have a very exciting opportunity to come together and watch the award-winning documentary Not Going Quietly. We also have an amazing live panel set up to discuss it with us immediately afterwards. Terri Wilder will be moderating and she shares her enthusiasm with us in this short video: Get Your Tickets Here We can
The Virtual Choir is Back — Submissions now Open!
April 6, 2022
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We are excited to announce that submissions are now open to join our next virtual choir! We have so enjoyed sharing your lovely voices with the world, so we had to bring it back for this year’s #MillionsMissing MAY. This year, the song we will be singing is True Colors as performed by Anna Kendrick
