The updated NICE guideline on ME/CFS contains substantial changes that alter the treatment and management of people with ME in England and Wales*. We need your help to tell doctors and other medical staff that the recommended treatments for people with ME have changed. We want to get the message out that there are new
Outreach to BIPOC communities has always been a challenge in ME/CFS. In a disease where diagnosis is so hard to come by, who gets a diagnosis is not a matter of prevalence but a matter of privilege. While community-based studies show just as many Black people get ME as white people, if not more, white
We’re thrilled to announce the winners of our postcard design contest for our second annual Postcards to Doctors campaign! We received over 100 submissions from 40 people by the October 5th deadline. We were so impressed by the beauty, cleverness, and skill on display in these wonderful pieces. It was no small feat to choose just
March 11 Update: After thoughtful deliberation, we have made the difficult but necessary decision to postpone our Medical Education event in London, originally due to take place on April 1 at the LSHTM. We know how much this means to the community, and we did not make this decision in haste. The health and safety
On Friday, May 26th, New York State (NYS) Health Commissioner Dr. Howard Zucker emailed a letter regarding Myalgic Encephalomyelitis (ME) to eighty-five thousand physicians in NYS. In the letter he describes the illness, encourages physicians to consider ME as part of a differential diagnosis when evaluating patients with symptoms, and refers readers to Jen Brea’s
The Blue Ribbon Foundation, the non-profit behind the documentary Forgotten Plague, has an educational and research agenda. In addition to getting the film in front of as many people in the medical and health profession as possible, one of the primary programs they have created is a student fellowship for medical students to assist in top ME research
