As part of our OMF End ME/CFS Project, this study will conduct a comprehensive, “Big Data,” analysis on severely ill ME/CFS patients with the goal of finding sensitive and distinctive molecular biomarker(s).
Very little research has been done in the bedbound. severely ill patients because they are hard to reach. By looking at the simple body fluids of the severely ill, we may discover distinctive biomarkers that have not been found in previous ME/CFS studies. By then testing these biomarkers in the less severely ill, we may discover an inexpensive and clinically useful diagnostic test. “Hopefully, the more severely ill will have a stronger signal of what’s going wrong,” said Dr. Davis, OMF Scientific Advisory Board Director. “As a result, we won’t need as many patients.”
“OMF has brought together a high caliber of scientists and laboratories with methods to approach this biomarker search and urgent research in depth,” said OMF Executive Director Linda Tannenbaum. “We will start with a few patients with our current funding. We urgently need more funding to increase the patient size and make this happen.
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For more details on the OMF Severely Ill Big Data Study please read the study or the Question and Answer Article
Why We Keep Telling the Story of ME to the Press
June 6, 2023
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Our press work continues to drum a strong beat as we tell the story of ME everyday to the media. We will continue to fight for our community’s decades of expertise living with, treating and researching ME to be heard, and integrated into our government’s Long COVID response. We refused to be erased from the
1 thought on “Crowd funding for The OMF ME/CFS Severely Ill Big Data Study”
“We have great news for you! An anonymous supporter has give a spectacularly generous donation of $500,000 to the Open Medicine Foundation and the END ME/CFS Project.
We are very, very grateful to that donor and to every one of our contributors. We simply can’t end ME/CFS without you.
And so with a single stroke, we have already achieved the first phase of our crowdfunding campaign, which aimed to raise $375,000 to fund 15 patients in the ‘Severely Ill, Big Data’ biomarker project. It’s fitting that we’re able to announce this on August 8th — Severe ME Day.
The campaign has been so successful that we’ve decided to continue our crowdfunding campaign for this study for the full amount of money required, which is $1 million to fund 40 patients at $25,000 each.
We’ve already raised more than $600,000, and we’ll give you the exact amount soon.
Many thanks again to all our donors and supporters. Remember that all donations count and that often smaller donors motivate big donors to give big money.
So please keep giving and let’s get this study funded!
Read more about this research:
http://www.openmedicinefoundation.org/mecfs-severely-ill-big-data-study/
You can donate here: http://www.openmedicinefoundation.org/donate-today-to-the-severely-ill-big-data-study/
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