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Category Archives: Crowdfunding

UK fundraiser seeking your ME stories

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Ellie Rushton, Birmingham UK, is setting out on a rather unique fundraising adventure. For the next six months (September to February) she will be attempting to do 1000 reps of bodyweight exercises every, single, day. Ambitious indeed! But what does it have to do with ME? “I had never heard of ME ...

Why people with ME need healthy allies

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On Sunday 29th of September, my husband, David, and our daughter, Rosslyn, are taking part in the Great Scottish Run 10K to raise money for #MEAction UK. As friends of #MEAction volunteer Emma Shorter and her family, David and Rosslyn have been aware of ME for some time but they’ve only ...

I’m angry, but I’m not alone. 

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I’m angry, but I’m not alone.  Hi, my name is Ben HsuBorger, Director of Global Community and Campaigns for #MEAction, and I’m a person living with myalgic encephalomyelitis for over 14 years. I’m deeply grateful for the community and tribe I’ve found at #MEAction that remind me I’m not alone -- ...

Hannah Bowlus: Fighting Inequality, Finding Power in Community

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  I'm Hannah Bowlus and I’m the administrative assistant at #MEAction. I take care of basic things like mailing t-shirts, archiving and scheduling calls. I talk with a lot of you. The more I get to know this community the more urgent and vital our work feels. I get to see ...

Meet the #MEAction Staff: Espe Moreno

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I am delighted to be part of the series in which you are getting to know the #MEAction staff! My name is Espe and I am #MEAction's UK Coordinator. I am so honoured to be a part of the staff at #MEAction. I came to #MEAction via Unrest, as I was ...

Meet the Staff: Holly Latham

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It is an honor to volunteer and work for #MEAction. #MEAction came to me at a time in my illness when I was finally able to be online, do advocacy work, and find community. To understand why #MEAction’s mission and approach to activism is so important to me, we need ...

Meet the #MEAction Staff: Laurie Jones

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Meet the #MEAction Staff! Over the next couple of weeks, the staff at #MEAction will be sharing their experiences and insights into what they do and what brings them to this work. I am so thankful for this opportunity for you all to get to know this amazing group of people ...

Research: supporting advocacy orgs yields huge payoffs

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This Giving Tuesday, I've got some good science to show why you should donate to #MEAction and other advocacy organizations! The study Disease Politics and Medical Research Funding: Three Ways Advocacy Shapes Policy sets out to discuss single-disease interest groups and their influence on US politics: "This article explores their effects on federal ...

#MEAction Board Member, Pam Laird, Celebrates Fundraising Success

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I’ve been privileged to serve on the #MEAction Board these last three years. Though I’ve worked in Silicon Valley and seen many high-growth start-ups, #MEAction’s progress has been one of the wildest rides I’ve ever seen. I’ve been amazed at the level of grass-roots participation and growth you’ve made happen. When ...

#SockItToMECFS with BHC’s new fundraising challenge!

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Bateman Horne Center launches the #SockItToMECFS Challenge. Wear your wildest and wackiest socks to raise awareness and funds for advancing ME/CFS diagnosis and care. Challenge your friends to do the same ...