On Sunday 29th of September, my husband, David, and our daughter, Rosslyn, are taking part in the Great Scottish Run 10K to raise money for #MEAction UK. As friends of #MEAction volunteer Emma Shorter and her family, David and Rosslyn have been aware of ME for some time but they’ve only relatively recently gained a
I’m Hannah Bowlus and I’m the administrative assistant at #MEAction. I take care of basic things like mailing t-shirts, archiving and scheduling calls. I talk with a lot of you. The more I get to know this community the more urgent and vital our work feels. I get to see everything that’s going on
Rat Queens, a show on the popular Twitch channel, HyperRPG, is hosting a fundraiser for #MEAction this Wednesday, May 8th at 7pm PST. Twitch is a live streaming platform and anyone can watch and participate from their homes! 100% of the proceeds will go to #MEAction. Rat Queens (based on the Image Comic Book Series by
On 3rd, February 2019, [email protected] held a supper quiz in North London to raise awareness for myalgic encephalomyelitis (ME). [email protected] is a committee of family and friends coming together to raise awareness for ME. Over 200 people attended this special dinner and quiz night which was inspired by festive quizzes held at the family of our
This Giving Tuesday, I’ve got some good science to show why you should donate to #MEAction and other advocacy organizations! The study Disease Politics and Medical Research Funding: Three Ways Advocacy Shapes Policy sets out to discuss single-disease interest groups and their influence on US politics: “This article explores their effects on federal medical research priority-setting.
Across the globe, we are pursuing creative projects across all mediums to tell the world about myalgic encephalomyelitis (ME). In our fall roundup, you’ll be inspired reading about the work and accomplishments of some of our community heroes. Support the #MEAction community by donating to our #GivingTuesday campaign this Tuesday, Nov. 27 where Facebook will match your
#MEAction is thrilled to announce that it has received a $50,000 donation from the Pineapple Fund, an anonymous donor who is one of the largest holders of Bitcoin in the world. “The #MEAction community is incredibly grateful to the Pineapple Foundation for helping our organization support the work of activists across the world fight for change
OMF invites the ME/CFS community to join together to thank the Pineapple Fund by adding your appreciation to our online community-wide thank you card.
Pineapple Fund was so moved by the outpouring of support from the patient community and the importance of OMF’s research that they have increased their donation to a total of $5 million for research.
Open Medicine Foundation is excited to launch Triple Giving Tuesday OMF which will run from Tuesday, Oct. 17, through Tuesday, Nov. 28. Wonderful, caring, and compassionate OMF supporters, Jack and Dilla Cosgrove and family, have graciously pledged a $100,000 matching gift to encourage world-wide support of Triple Giving Tuesday OMF. Chris shares with you why