#MEawarenesshour: first symptom-themed hour, 24th June Next Wednesday (24th june) we’ve decided to try something a little different for #MEawarenesshour. Instead of talking in general about ME we would like to focus on one of its major symptoms, PEM – Post Exertional Malaise. Why? Because PEM is one of the most misunderstood symptoms of ME
Tune in to the LIVE webcast on July 1st, 1:00PM EST and watch Dr Ian Lipkin and Dr Mady Hornig take the #ChilliMEchallenge!
Researchers at Columbia CII have taken on the #chilliMEchallenge – and they just made it a whole lot spicier! The #chilliMEchallenge hit ME/CFS social media by storm. Four young women with ME/CFS got together and issued a fun challenge — to eat a hot chilli or donate to ME/CFS research at Columbia — throughout our
We have our next update on END ME/CFS’s Big Data study of severely ill patients and the sum raised so far is an amazing $103,840, from 235 donations.
The National Institutes of Health have released the results of their 1.5 day workshop on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. The full P2P workshop abstract is available online but some of the most interesting and important points are excerpted below. Leave a comment and tell us, what do you like about the report? What don’t you
#MEAwarenesshour uses Twitter to reach beyond the ME/CFS patient community From the organizer, Amanda Carroll: The 10th of June #MEawarenesshour: only our second ME awareness hour and what a success! There was a great response, hundreds of tweets and it turns out that doctors, pharmacist and health workers around the world tuned in to read
Radio Interview about living with ME on RTE – The Irish National Radio station After the article about living with ME/CFS was posted in the journal.ie I was invited to do a radio interview along with Sarah Meehan who is also living with ME [button_color url=”http://www.rte.ie/radio/radioplayer/rteradiowebpage.html#!rii=9%3A20794540%3A15036%3A10%2D06%2D2015%3A” content=”Listen to the full interview” target=””] Best wishes to all.
The Artist book consists of a set of loose A5 sheets, gathered in a custom-made wooden box, reflecting on life with chronic illness seen through art and nature.
Online art and health exhibition featuring extracts from “The State of ME” As part of London Creativity and Wellbeing week 4-12 June, The Well Made Project is hosting an online exhibition called A Series of Unexpected Events. ‘Over the course of a week, this online exhibition on art and health will publish an artwork by
We humbly ask for the community’s help to fundraise for a field worker in Auckland, New Zealand. We hope to set a precedent for the international community, providing a platform for other countries to campaign for their own field workers