Author: #MEAction

#MEawarenesshour Special Post Exertional Malaise Hour

#MEawarenesshour: first symptom-themed hour, 24th June Next Wednesday (24th june) we’ve decided to try something a little different for #MEawarenesshour. Instead of talking in general about ME we would like to focus on one of its major symptoms, PEM – Post Exertional Malaise. Why? Because PEM is one of the most misunderstood symptoms of ME

Read More »

Ian Lipkin and Mady Hornig respond to the #ChilliMEchallenge

Researchers at Columbia CII have taken on the #chilliMEchallenge – and they just made it a whole lot spicier! The #chilliMEchallenge hit ME/CFS social media by storm. Four young women with ME/CFS got together and issued a fun challenge — to eat a hot chilli or donate to ME/CFS research at Columbia — throughout our

Read More »

The NIH talks ME/CFS: The P2P Workshop Report

The National Institutes of Health have released the results of their 1.5 day workshop on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. The full P2P workshop abstract is available online but some of the most interesting and important points are excerpted below. Leave a comment and tell us, what do you like about the report? What don’t you

Read More »

UPDATE: #MEAwarenesshour reaches beyond Myalgic Encephalomyelitis Patients

#MEAwarenesshour uses Twitter to reach beyond the ME/CFS patient community From the organizer, Amanda Carroll: The 10th of June #MEawarenesshour: only our second ME awareness hour and what a success! There was a great response, hundreds of tweets and it turns out that doctors, pharmacist and health workers around the world tuned in to read

Read More »

Living with ME Radio interview

Radio Interview about living with ME on RTE – The Irish National Radio station After the article about living with ME/CFS was posted in the  I was invited to do a radio interview along with Sarah Meehan who is also living with ME [button_color url=”!rii=9%3A20794540%3A15036%3A10%2D06%2D2015%3A” content=”Listen to the full interview” target=””] Best wishes to all.

Read More »

The Well Made Project – A Sense of Unexpected Events

Online art and health exhibition featuring extracts from “The State of ME” As part of London  Creativity and Wellbeing week 4-12 June, The Well Made Project is hosting an online exhibition called A Series of Unexpected Events.  ‘Over the course of a week, this online exhibition on art and health will publish an artwork by

Read More »
Scroll to Top