Share #MyMEstory with the #chilliMEchallenge

As part of the #chilliMEchallenge we are encouraging people to tell #myMEstory. This is the part of the #chilliMEchallenge that those ill with ME can participate in.
People often refer to M.E. as an invisible illness but we want to show the voices and faces behind M.E. We want you to tell your story to create awareness and encourage the healthy people that support us to chomp on chillis for us. The research being done is so good it is encouraging people to donate massive amounts. Look at the individual donation of $500,000 announced during Columbia’s live streaming of the #chilliMEchallenge.
So what do you have to do! If you are able sit in front of a camera, take out your phone to record or if too unwell have someone else film you telling your story. Tell us what your life was like before M.E., how you got M.E. and the impact it is had on your life. Look at the examples below and if you don’t fancy being on-screen, be creative and look at Suzanne’s lovely way of telling her story with words written on cards.
Storytelling is powerful and it is about time the world heard ours. Stories connect people and we aim to have the M.E. community unite as one strong loud voice and use social media to tell #myMEstory so we will be invisible no more. There are two ways to share knowledge..you can PUSH the information out….or you can PULL them in with your story.
[button_color url=”https://www.youtube.com/my_webcam” content=”Film #MyMEstory” target=””]
[button_color url=”https://www.youtube.com/upload” content=”Upload #MyMEstory” target=””]

What is your #myMEstory?

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A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

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