Share #MyMEstory with the #chilliMEchallenge

As part of the #chilliMEchallenge we are encouraging people to tell #myMEstory. This is the part of the #chilliMEchallenge that those ill with ME can participate in.
People often refer to M.E. as an invisible illness but we want to show the voices and faces behind M.E. We want you to tell your story to create awareness and encourage the healthy people that support us to chomp on chillis for us. The research being done is so good it is encouraging people to donate massive amounts. Look at the individual donation of $500,000 announced during Columbia’s live streaming of the #chilliMEchallenge.
So what do you have to do! If you are able sit in front of a camera, take out your phone to record or if too unwell have someone else film you telling your story. Tell us what your life was like before M.E., how you got M.E. and the impact it is had on your life. Look at the examples below and if you don’t fancy being on-screen, be creative and look at Suzanne’s lovely way of telling her story with words written on cards.
Storytelling is powerful and it is about time the world heard ours. Stories connect people and we aim to have the M.E. community unite as one strong loud voice and use social media to tell #myMEstory so we will be invisible no more. There are two ways to share knowledge..you can PUSH the information out….or you can PULL them in with your story.
[button_color url=”https://www.youtube.com/my_webcam” content=”Film #MyMEstory” target=””]
[button_color url=”https://www.youtube.com/upload” content=”Upload #MyMEstory” target=””]

What is your #myMEstory?

Facebook
Twitter
WhatsApp
Email

Latest News

Facets of ME: Temperature Dysregulation

Welcome to June’s #FacetsOfME! Facets of ME is an educational feature where we dive into a particular aspect (or facet) of ME and explore it more in depth. This month we are focusing on temperature dysregulation- heat and cold intolerance. It is surprising how difficult this symptom can be to manage until you experience it.

Read More »

Dept. of Labor Updates Information on ME/CFS for Workers, Employers

The U.S. Department of Labor’s Office of Disability Employment Policy (ODEP) has updated the information on ME/CFS provided at its Job Accommodation Network website to align with the most current CDC guidance. This action will help workers and employers find accurate information on ME/CFS and combat stigma and improve workplace outcomes. At #MEAction’s recent meeting

Read More »

#MillionsMissing: 7 Days in Self Portraits with ME/CFS

After taking #MEAction’s photography workshop with photographer Lucia Doynel for #MillionsMissing, Terra Dumont produced these stunning photos as a glimpse into her life as someone living with ME/CFS. Terra spread this experience over 7 days, focusing on a different theme each day. See her wonderful work and accompanying commentary below. Click on any of the

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top