#myMEstory

Share on facebook
Share on twitter
Share on email

Share #MyMEstory with the #chilliMEchallenge

As part of the #chilliMEchallenge we are encouraging people to tell #myMEstory. This is the part of the #chilliMEchallenge that those ill with ME can participate in.
People often refer to M.E. as an invisible illness but we want to show the voices and faces behind M.E. We want you to tell your story to create awareness and encourage the healthy people that support us to chomp on chillis for us. The research being done is so good it is encouraging people to donate massive amounts. Look at the individual donation of $500,000 announced during Columbia’s live streaming of the #chilliMEchallenge.
So what do you have to do! If you are able sit in front of a camera, take out your phone to record or if too unwell have someone else film you telling your story. Tell us what your life was like before M.E., how you got M.E. and the impact it is had on your life. Look at the examples below and if you don’t fancy being on-screen, be creative and look at Suzanne’s lovely way of telling her story with words written on cards.
Storytelling is powerful and it is about time the world heard ours. Stories connect people and we aim to have the M.E. community unite as one strong loud voice and use social media to tell #myMEstory so we will be invisible no more. There are two ways to share knowledge..you can PUSH the information out….or you can PULL them in with your story.
[button_color url=”https://www.youtube.com/my_webcam” content=”Film #MyMEstory” target=””]
[button_color url=”https://www.youtube.com/upload” content=”Upload #MyMEstory” target=””]

What is your #myMEstory?

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Sign petition To Fix ME/CFS tracking In US!

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the

Read More »

NICE announces roundtable event to ensure implementation of ME/CFS guideline

NICE announced today that it will hold a roundtable in September as the next step in the publication of the ME/CFS guideline. The roundtable will include representatives from patient organisations and charities, relevant professional societies, NHS England and NHS Improvement, NICE and the guideline committee. It aims to, “better understand the issues raised and determine

Read More »

#MEAction & 6 ME Orgs Call for CDC to Change How it Tracks ME/CFS

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM).  Today, ME/CFS does not exist in the US ICD-10-CM. Instead,  most US doctors assign the code for chronic fatigue

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top