Promote your Action at #MEAction: Why and How

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Why should you promote your action at #MEAction?

This article is part of an ongoing series highlighting different #MEAction features and how to use them. For more how-to and informational articles, please see all the articles on the resources page.
You are doing incredible things for the Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) community and we want to help. We’re a platform for your voice. Every action that you create orpromote with us strengthens the ME/CFS community as a whole. We’re here to help spread the word about the work that you’re doing in exchange. Help us help you!
After you submit we will review your action, checking to make sure it’s not spam or inappropriate. Then, we’ll post it on the website alongside all the other actions. We’ll start posting about it on Twitter almost immediately and will do our best to post about it on Facebook or in an email campaign as well. Once your action is posted on the website, it’s time for us to work together to make sure as many people as possible see your action. Help us by sharing the link with your own friends and family on social media or via email. And don’t forget to show some love to the other actions. Remember, we’re all in this together!

What kinds of actions can you promote?

Generally speaking, if it has to do with ME/CFS, you’ve come to the right place! We want to promote:

  • Your fundraisers
  • Your research projects
  • Your awareness campaigns
  • Your events
  • Your projects
  • Your petitions
  • Your campaigns

Basically, we want to promote your work. There’s nothing off limits that is respectful and done for the benefit of ME/CFS patients. Not sure, submit it! We’ll contact you to discuss alternative options if it’s not a good fit.

How do you promote an action?

Let’s get you promoted! Head over to #MEAction and submit your action. It’s a painless process, I promise. After you create an account you can submit a few short paragraphs about your action along with a photo. You can do as much formatting as you want or just submit what you have. The team is happy to help get it looking pretty!

Ready for some tips and tricks?

  • Give it a strong title. Fewer words, more action verbs. Remember, the title is your first impression, put your best foot forward!
  • Don’t forget the picture! It’s true, it’s probably worth a thousand words. A strong picture can help you tell a story or convey a message without a single word. It can be a logo or just an image off the internet that fits with your theme. Just make sure to use images you have permission for. When in doubt, search for an image labeled for reuse.
  • Give one clear call to action. Do you want reader to sign a petition, attend an event, send a letter, donate to a fundraiser? Make sure that there is one central goal. It can be tempting to list tons of ways that people can get involved with your cause but make sure that the most important goal is front and center.
  • Make it interesting! Is there a deadline, a goal, something that you can provide updates on to keep your supporters engaged? Make sure to mention this! We all want to help, so help us get excited about your action.

What if I haven’t started yet?

We’ve got even more resources to help you plan and execute your action! Check out these posts about creating actions. Create an Event or Create a Petition at #MEAction, we’ll help you every step along the way!
You are officially ready for a promotion. We can’t wait to start working with you! Come on over and submit your action today so that we can start shouting from the rooftops about the great work that you’re doing for the ME/CFS community. Remember, every action that you submit to the network strengthens our ability to come together as a community and bring about positive change for ME/CFS patients around the world. Together, we can become the strength of our true numbers. Let’s go take action together!

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2 thoughts on “Promote your Action at #MEAction: Why and How”

  1. I cannot do this myself but my recurring idea is to inundate and educate the pertinent Congressional people and NIH staff persons about ME/CFS/SEID via various articles about this disease on a Monday thru Friday basis for a pre-determined period based on need/schedules. I believe that the NIH has been instructed by Congress to re-evaluate their expenditures and submit a new budget based on specific criteria that we can meet by sending blogs and research articles that directly regard this criteria. Cort Johnson, for example, is well on the way to establishing the history of why we receive such poor funding and it comes down to lack of knowledge and disinterest in ME/CFS. His most previous blogs alone would cover several months of daily emails. MEAction would need his permission to reprint and that would require that you contact him directly as well as the many others. You have already stated that you have the software available to send out automatic weekday emailings, I believe. It would appear that now is a most critical time to literally inundate the people who will ultimately make the decision regarding how much funding we will receive about the seriousness of ME, the numbers involved, the cost to the economy and the individual, and the other criteria that Congress has mandated be met by the NIH. Do you see their education as an important task and how can be go about making it happen? I also feel that postal mailings would prove fruitful as well to the same individuals.
    As this would be its own project, I also suggest the logo “Rescue ME” as a letterhead to each article sent out and that it be done primarily in gray (ME doesn’t cause death directly in most all cases) with hot pink (females) and blue (males) touches. Are there any graphic artists available to develop such a logo?
    I’d appreciate any comments as to the validity of such an approach and whether it would serve the goal of helping to ensure increased funding. Marcie Myers. [email protected]

    1. Hi Marcie, Would you consider posting this over in the Idea Center? I don’t want this idea to get missed here in the comments section. Thanks for sharing this!

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