Author: #MEAction

UPDATE: New Details from Open Medicine Foundation's End ME/CFS Project

Open Medicine Foundation (OMF) End ME/CFS Project This is a game-changing initiative to find a cure for ME/CFS, a devastating and life-altering disease that affects more than 2.5 million people in the U.S. alone — Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. This is the first time ever that leading world-class scientists will be putting their minds together

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Trio of Articles from Palo Alto Online Highlight ME/CFS Patients

Palo Alto Online recently published a series of three articles highlighting the struggles faced by Mylagic Encephalomyelitis (Chronic Fatigue Syndrome) patients and their caregivers. The series centers around Whitney Dafoe and his father’s research work. All three articles are excerpted and briefly summarized below. Chronic fatigue syndrome saps its victims, but new research may find

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New Features at #MEAction!

Announcing Private Messaging, and an Idea Center with real-time notifications. You’ve all been unreasonably patient and understanding as we work through the bugs of our beta launch and work to build the best possible platform for you. The #MEAction team is thrilled to announce a new set of features available now for #MEAction members. Private

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Meet Marathon Mike: Running 28 Marathons for Invest in ME

Meet Mike, the man behind Mike’s EU Marathon Challenge Mike has pledged to run 28 marathons for Myalgic Encephalomyelitis awareness and Invest in ME Recently I interviewed Mike from Mike’s EU Marathon Challenge to get to know the man behind the impressive goal. If you don’t remember, Mike recently pledged to run 28 marathons for

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Promote your Action at #MEAction: Why and How

Why should you promote your action at #MEAction? This article is part of an ongoing series highlighting different #MEAction features and how to use them. For more how-to and informational articles, please see all the articles on the resources page. You are doing incredible things for the Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) community and we

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#myMEstory

As part of the #chilliMEchallenge we are encouraging people to tell us their #myMEstory and create awareness by putting a voice and a face to this illness.

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Create a Petition at #MEAction: Why and How

Create a Petition at #MEAction This article is part of an ongoing series highlighting different #MEAction features and how to use them. For more how-to and informational articles, please see all the articles on the resources page. Petitions are a great way to organize a group of people and show the amount of support for

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