#MEawarenesshour: first symptom-themed hour, 24th June
Next Wednesday (24th june) we’ve decided to try something a little different for #MEawarenesshour. Instead of talking in general about ME we would like to focus on one of its major symptoms, PEM – Post Exertional Malaise.
Why? Because PEM is one of the most misunderstood symptoms of ME and we would like to try and change that a bit. Let’s use twitter to explain to the outside world what it’s like to have to ‘pay’ for everything we do. How the smallest activity mental or physical can wipe us out for days, weeks and even months.
So please share your experiences of PEM using the #MEawarenesshour hashtag next Wednesday between 8pm and 9pm (London time) to shine a light on this debilitating and dreadful ME symptom.
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– Amanda Carroll