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Category Archives: Patients

Postcards to Doctors Featured Artist: Lia Pas

#MEAction’s Postcards to Doctors initiative has continued to be an incredible success! Thanks to the hard work of the #MEAction community we have sent postcards to nearly 6,000 clinicians across the United States. We could not have done this without the invaluable contributions from the artists who designed our postcards ...

ME Services in the UK Not Fit for Purpose

A recent survey conducted by #MEAction UK found that UK specialist myalgic encephalomyelitis (ME) services are not fit for purpose. Areas investigated included: Management strategies Experience attending a clinic Cognitive behavioural therapy (CBT) Activity management The survey was conducted to provide evidence to the National Institute for Health and Care ...
Background of papers with graphs and charts, overlayed by text reading "Take the ME call for evidence survey"

Your experience of ME/CFS services – Take the survey by #MEAction UK

The National Institute for Health and Care Excellence (NICE) are updating their guidelines on ME. As part of this they have published a call for evidence about 3 topics. #MEAction UK has put together the following survey to provide further evidence for the committee. The survey asks about advice given ...

The Unique Challenge of Aging with M.E.

Aging can be a challenging time for anyone but people with the debilitating, chronic disease of myalgic encephalomyelitis (ME) often find that their symptoms are dismissed as a "normal" part of aging, and so are left without the diagnosis, care and support that they need from their medical providers and community ...

Proud Accessible Activism: The ME Debate Virtual Demonstration

Throughout history, activism and campaigning have been a driving force for positive change across the world. From civil rights to LGBTQ rights and more. However much of this has been inaccessible to large swathes of the disability community. For the ME community - the #MillionsMissing -  the nature of this ...

Stuart Murdoch’s open letter ahead of the ME Debate

Stuart Murdoch is the lead singer of Belle and Sebastian. He has had ME for 28 years and he has kindly shared with us this open letter to the UK government ahead of the ME debate on Thursday, 24th January. Dear UK Government, I am one of the 250, 000 ...

Apply for Stanford Medicine X Conference as ePatient or Presenter – deadline Jan. 31st

Stanford University hosts an annual academic conference, Medicine X, every September to bring together community stakeholders, innovators and leaders in health care to empower collaborative change. This year's Medicine X | Change conference will be held at Stanford University in Palo Alto, California on Sept. 20 - 22, 2019. Stanford ...

NEED HELP? Support and Crisis Resources

NEED HELP? Support and Crisis Resources Living with ME can be extremely difficult. #MEAction strives to create spaces of support. Everyone at #MEAction cares deeply about the individuals in our community. We fight for your health in advocacy and scientific spaces, but we also want you to know that you are ...