Virtual #MillionsMissing 2020

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Category Tag: ME/CFS

NIH Neglect is a Key Reason for the ME/CFS Crisis

The Associated Press published a syndicated article last week profiling a study being done by the NIH on ME/CFS. The article describes well the severity of ME, and the immense challenges our community faces, including lack of treatments, difficulty getting a diagnosis, skeptical doctors and a lack of knowledge about ...

Why the Fight is Personal

I am so honored to work with the #MEAction community on a daily basis. Our organization is fighting hard everyday to communicate the truth about myalgic encephalomyelitis (ME) - to shout it out loud and clear - to the world. My role as the #MEAction Editor & Communications Manager is ...

Hannah Bowlus: Fighting Inequality, Finding Power in Community

I'm Hannah Bowlus and I’m the administrative assistant at #MEAction. I take care of basic things like mailing t-shirts, archiving and scheduling calls. I talk with a lot of you. The more I get to know this community the more urgent and vital our work feels. I get to see ...

UC Berkeley will Host Unrest Screening

Calling all people in the Bay Area - and beyond, You are invited to attend a screening of the Oscar-nominated documentary, Unrest, hosted by UC Berkeley's School of Public Health on Feb. 20th. Register for the FREE event today. Please take this opportunity to invite your Congressional and State representatives to educate them ...

OMF receives $5 million donation from Pineapple Fund

Pineapple Fund was so moved by the outpouring of support from the patient community and the importance of OMF's research that they have increased their donation to a total of $5 million for research ...