Covid-19 Resources for People with ME

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Category Tag: COVID-19

Resources for COVID-19 “Long-Haulers” from the ME/CFS Community

A growing number of people report persistent symptoms long after being infected with the SARS-CoV-2 virus. The "long-haulers," a name coined for long-term COVID-19 patients, experience ongoing fatigue, headaches, shortness of breath, muscle pain, sleep disturbances, cognitive impairments, intermittent fevers, and more. Many long-haulers reveal that these and other symptoms ...

#MEAction will Host Seminars on Post-Viral Illness for Clinicians and Covid “Long Haulers”

Press Contact: Adriane Tillman; [email protected] A cohort of COVID-19 patients are still sick months after clearing the virus, many of whom were considered “mild” cases. Scientific studies show that post-viral illness is common following large viral outbreaks. Dr. Anthony Fauci said people who are not recovering after contracting COVID-19 are ...
COVID viral particles float around a person wearing a facemask that says MillionsMissing

Take action: graded exercise harming people with ME and COVID long haulers

#MEAction UK has sent an open letter to Matt Hancock asking him to recognise the harm caused by graded exercise therapy. We are calling on him to ensure all advice for people with ME, and those at risk of developing ME post-COVID, warns of the harm from graded exercise therapy ...
Reflection of woman with COVID-19 virus imposed on top

Graded exercise therapy not recommended for post-COVID fatigue, say NICE

The National Institute for Health and Care Excellence (NICE) have released a document entitled “interim findings”, stating that the recommendation of graded exercise therapy for mild and moderate ME/CFS should not apply to people with fatigue following COVID-19. They note that the existing guideline was published in 2007, many years ...

Post-COVID research & clinical care must include ME/CFS

People with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have been concerned since the start of the coronavirus pandemic that a subset of COVID-19 patients will go on to develop ME/CFS. Unfortunately, we are already hearing from many COVID-19 survivors around the world that they are continuing to experience debilitating symptoms for ...

Citizen science highlights non-recovery in COVID-19 patients

Recently, #MEAction received what may be the first, participant-led analysis of COVID-19, entitled What Does COVID-19 Recovery Actually Look Like? An Analysis of the Prolonged COVID-19 Symptoms Survey by Patient-Led Research Team. The Body Politic COVID-19 Support Group surveyed over 600 participants who had experienced/were experiencing COVID-19 symptoms for at ...