Last October, I released the short documentary The Last Great Medical Cover Up to a widely receptive audience. Now, I am looking to alter and expand the film in time to promote Round 2 of the groundbreaking #MillionsMissing movement. And I need your help to make this new and improved version a reality.
Individuals living with ME are invited to send in short segments and/or photographs that they feel best depict the struggle of everyday life with the disease. For some, perhaps that’s getting out of bed, or standing up from the couch or a chair. Perhaps it’s eating or drinking, or brushing your hair or teeth. Maybe you’d like to send in a few seconds of someone filming you while you’re bedbound; what you choose to send is up to you, and what you feel best portrays life with ME.
Segments can be up to 3 minutes long, silent or narrated, and will feature at the end of the film. The short documentary will be edited into a trailer for wide distribution to promote #MillionsMissing and educate on life with ME. as well.
Material is welcomed from any and every country, in any and every language. They can be sent to [email protected] either directly, or through Dropbox or WeTransfer (both free tools), and should arrive no later than 20th August.
I am particularly interested in receiving material from male and child sufferers, who are often underrepresented in ME studies and film; if you know someone who fits this description, please pass the ask on. However, I am overjoyed to receive film from any and all comers.
Click below to send files using Dropbox.
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Click below to send files using WeTransfer.
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…or send files by email to [email protected]
Thank you so much for your time — and for your story. By showing the world what ME looks like, we put a human face on the disease. We show the human cost in lack of funding, poor medical education for clinicians, and low-quality studies that continue to dog ME. Your contribution can make a real difference!
In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the