Last October, I released the short documentary The Last Great Medical Cover Up to a widely receptive audience. Now, I am looking to alter and expand the film in time to promote Round 2 of the groundbreaking #MillionsMissing movement. And I need your help to make this new and improved version a reality.
Individuals living with ME are invited to send in short segments and/or photographs that they feel best depict the struggle of everyday life with the disease. For some, perhaps that’s getting out of bed, or standing up from the couch or a chair. Perhaps it’s eating or drinking, or brushing your hair or teeth. Maybe you’d like to send in a few seconds of someone filming you while you’re bedbound; what you choose to send is up to you, and what you feel best portrays life with ME.
Segments can be up to 3 minutes long, silent or narrated, and will feature at the end of the film. The short documentary will be edited into a trailer for wide distribution to promote #MillionsMissing and educate on life with ME. as well.
Material is welcomed from any and every country, in any and every language. They can be sent to [email protected] either directly, or through Dropbox or WeTransfer (both free tools), and should arrive no later than 20th August.
I am particularly interested in receiving material from male and child sufferers, who are often underrepresented in ME studies and film; if you know someone who fits this description, please pass the ask on. However, I am overjoyed to receive film from any and all comers.
Click below to send files using Dropbox.
[button_color url=”http://meaction.net” content=”Click here for Dropbox” target=”https://www.dropbox.com/”]
Click below to send files using WeTransfer.
[button_color url=”http://meaction.net” content=”Click here for WeTransfer” target=”https://www.wetransfer.com/”]
…or send files by email to [email protected]
Thank you so much for your time — and for your story. By showing the world what ME looks like, we put a human face on the disease. We show the human cost in lack of funding, poor medical education for clinicians, and low-quality studies that continue to dog ME. Your contribution can make a real difference!
Sign petition To Fix ME/CFS tracking In US!
September 13, 2021
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In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the
3 thoughts on “Contribute clips to L.A.'s #MillionsMissing Video”
Thank you for this!
How do we see the video? The link from MEPedia is broken.
It appears that the YouTube channel no longer exists. Perhaps we can find another link? I’ve asked L.A. on Facebook. 🙂
Hi all,
The film has been taken down already to prepare for edits. Very exciting!
But yes, my videographer has it at the moment for tweaks.