What are the demands of this protest?
I touched on the ideas above in ways that my life could be better. Here is a list of the demands and a detailed explanation : http://millionsmissing.
How can I participate?
If you live in one of the cities with a demonstration, the organizers would love to see you ! You can find more info here: http://millionsmissing.
There are several simple ways you can help. Change your profile picture. Share information on May 25th the day of the protest. Place shoes on your doorstep in solidarity with these ME warriors and share the photo. Donate to the demonstration here http://millionsmissing.
Can I speak to my elected official about this?
Yes, please do! Our elected officials do want to hear from us and the more people they hear from, the better. I was honored to have a phone meeting with a staffer from Senator Lamar Alexander’s office in August of 2015 regarding my concerns with ME and requests for funding from the NIH. I am so grateful that those of us in Tennessee have Senator Alexander to turn to at this time. He serves as the Chairman of the Health, Education, Labor and Pensions committee. I hope to have more meetings in the future where I can express the concerns of Tennesseans with ME. We have begun an MEaction TN group and we’d love to have all of those with an interest in this to be a part of it.
I also plan to reach out to Senator Bob Corker. I am so proud of his work on the End Slavery Act. I cannot help but think he will understand the plight of those with ME as well.
I am excited about sending this information to Representative Stephen Fincher as well. These representatives represent you in a special way as they are familiar with your area of the state and the issues in it that affect you. Let’s utilize that. They want us to!
Please, please join me in talking to your local and state representatives. I had written Jimmy Eldridge, my representative to the TN house of Representatives, about my concerns to end the backlog of rape kits and one of his staffers was great about looking into it and responding. I should have written him sooner with my concerns about ME as well.
Find your senators here : http://www.senate.gov/
Find your representative here: http://www.house.gov/
Tennesseans find your representatives here: http://www.capitol.tn.gov/
Thank you so much for doing all you can. Together, we really can make a difference in countless lives.
6 thoughts on “A personal appeal by Holly L.”
Jaime, thank you for this. It is very moving and oh my goodness, does it sound familiar – you describe so well that old feeling when exercise used to such a great experience, instead of impossible, or if possible, terribly damaging
Some similar shoes of mine have, hopefully, arrived in London for the UK shoe demo, to be joined by many others, I hope.
Findlow,
Just to clarify! This one is by Holly L; I just posted it. 🙂
Thank you so much for the comment!
Jaime
Thanks. Findlow. Wasn’t it great when exercise felt good?
I appreciate the comments here. But they seem to be from last year! As someone with ME/CFS, I understand the difficulty of verifying and reading frequent posts. Am I missing something? I just joined, son perhaps I’ll get more info soon. I was really encouraged by Knoxville lighting the Henley St. Bridge this year. Before reading aboutvthatvon Twitter, I didn’t know there was an ME group here.
Thanks!
Sorry, this was an article from last year! To find out about new protest information, visit http://millionsmissing.meaction.net/. To keep updated about #MEAction’s current goings-on, subscribe to our newsletter. We promise we send out emails once a week around the protest (during ‘crunch time’) and less often otherwise. We won’t spam you. 🙂
Hi Theresa! If you are interested in joining us for TN advocacy efforts, please join our Facebook group MEAction TN. We also have a regular Facebook page. We would love to have you.
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